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Kelly Patient Expert

San Francisco, California
Jenelle is 5 and suffers from a rare form of Epilepsy called Lennox Gastaut Syndrome. Please feel welcome to follow her journey with this devastating condition.
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Jenelle's Guide on How to Meet Lots of Cute Firemen in 10 Days!

Where did March go?  I think it takes at least a week to fully recover and recollect your thoughts when your child has been in and out of the...

Shades of 2005 All Over Again!

In 2005, Jenelle had 15 trips to the ER, and 7 hospital stays.  2015 is trying to compete with that... but hopefully we got an answer this...

25 Minute Seizure Leads to Hospital Admission and New Drugs

On Saturday, March 7, Jenelle had a really great morning.  She did well in her Challenger baseball game, was alert and had great balance.  Big...

Sometimes I get quiet...

And sometimes I don't update because I simply don't know what to say...  where to begin? We seemed to have sailed smoothly though the holidays...

And before you know it... it's February!

Well, it seems I'm very remiss in updating.  Where to begin? I could have sworn I posted an update since we left the EGG in October. ...

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Joelle M. wrote on Kelly's Whiteboard. Feb 11 2011
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Feb 11 2011 by Joelle M.

Hi Kelly,

I am the mother of a 7 year old boy, Patrick, who was very recently diagnosed with LGS (although we had suspected this for at least 2 years)  I am wondering if you know of a support group for LGS parents in the Bay Area.  We live in Danville.  It would be good to know how many other families in the bay area are dealing with the same issues.  

Thanks,

Joelle  

 

 

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