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Katie C. Patient Expert

San Francisco, California
As a professional graphic designer, I tackle the ins and outs of the design world. As a professional patient, I manage the daily thorns of Crohn's disease and vasculitis (Wegener's). Fortunately, I have an incredibly supportive family, network of friends and colleagues, as well as a platform from... Full Bio
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Comparing the less toxic immunosuppressants for vasculitis. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Quick and interesting: The New England Journal of Medicine did a comparison of azathioprine and methotrexate for maintaining the remission status of vasculitides such as Wegen ... Read on »
Conmemorar. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain I am of the belief that is very healthy and good to remember those who have passed, particularly long before their time. September and October bring to mind the loss of a few ... Read on »
Crohn's sufferers speak their minds. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain “I could feel food scrape the raw sides of my intestine. If I ate lettuce, it would feel like I swallowed a fistful of razor blades.” When I read this quote in the Vancouver ... Read on »
Crohnology.MD by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain I’ve been a champion of this project since its inception — not to mention it’s run by a friend of mine and my doctor . Big congrats to the Crohnology.MD team who will be wor ... Read on »
Crohn’s never sounded so good. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain My favorite Pearl Jammer — Mike McCready —will play the national anthem at the Seattle Mariners game on May 19. McCready has had Crohn’s disease for over 20 years and is ... Read on »
Cure-all or quack remedy? by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain I get a lot of advice from people who don’t have Crohn’s disease or Wegener’s about what I should be supplementally taking and/or eating — and last time I checked, none of ... Read on »
Dale Carnegie was right... by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain ...when he said, “Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all.” With that in ... Read on »
Damaging your DNA. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain You already know that I am ferociously anti-smoking, but if this doesn’t change your mind about even that one cigarette you might consider having, I don’t know what will. ... Read on »
Dance medicine. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain In mid-August, I’m going to have another surgery experience under my belt (literally)—arthroscopic knee surgery. Yep, I knew I was in real trouble when I truly cou ... Read on »
David Garrard is the man. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain 18 touchdowns this season = $180,000 for Crohn’s and Colitis. Awesome. Check it out here: crohnsinthezone.com and ccfa.org And more about Garrard here: The Real Superman ... Read on »
Dear Broken American Health Care System. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Dear Broken American Health Care System, You forgot about my mental health. I was getting changed at the gym today and caught a glimpse of my lung surgery scars in the mirr ... Read on »
Design for patient dignity. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Combining two of my greatest passions — healthcare and design — the UK Design Council, the UK Department of Health and several teams of designers & manufacturers have crea ... Read on »
Disappearing cancers. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Growing up, my mom — the eternal optimist — always told me that any sickness I had would likely just “go away.” Hmmmm. This mentality obviously works for the occasional cold o ... Read on »
Dolphins help treat Crohn’s disease. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Okay, that isn’t entirely true, but it’s close and really interesting. “The same technology used to transport dolphins long distances is now being used at Barnes-Jewish H ... Read on »
Don't think twice, it's alright. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Help me out Bob. How do you keep a normal perspective when people are acting like this?: -I was crossing the street within my work campus this morning with my bowl of ce ... Read on »
Driven to steal. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Wow. I was floored (not to mention deeply saddened) by this story in the Sun Post-Herald police blotter: “ Woman says she stole items to pay for Crohn's medication ” Ummm ... Read on »
Dying for Crohn's. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Really interesting op-ed in the The Wall Street Journal by Gideon Sofer about the ethical (or rather unethical) obligations of drug companies: The FDA is killing Crohn’s patie ... Read on »
Eat well, be well, shop well. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain “We can leverage our size to create greater demand for healthy food,” Dr. Preston Maring of Oakland’s Kaiser Permanente medical center said. “It’s difficult for farmers to ... Read on »
Eat your heart out. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain It’s almost Valentine’s Day — which I secretly really like* — and with it comes something I truly love: chocolate eating with zero judgment. Aww yea. Seriously though, ... Read on »
Economic health care triage or... by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain ...“ Health Care You Can‘t Afford Not To Afford. ” Considering cutting back on a dose of medicine or skipping it altogether? Ignoring symptoms/markers you should be telling a ... Read on »