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Katie C. Patient Expert

San Francisco, California
As a professional graphic designer, I tackle the ins and outs of the design world. As a professional patient, I manage the daily thorns of Crohn's disease and vasculitis (Wegener's). Fortunately, I have an incredibly supportive family, network of friends and colleagues, as well as a platform from... Full Bio
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Chronic Style has moved! by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Chronic Style has moved (sort of). Visit our new site at chronicstyle.com . See you there! Read on »
The $10 cure-all. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain I’m forever amazed that at the end of almost every traumatic health experience I’ve been through — heart surgery, lung surgery, anaphylaxsis, Wegener’s flares, Crohn’s episo ... Read on »
Interrupted. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain “...having a life-threatening disease in your 20s carries a special set of psychological and social challenges. It defies our very definition of what ought to be. ... Read on »
Necessary connections. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain I was delighted and inspired to see Sean Ahrens in this Stanford Medicine X Video.* Check out Sean’s amazing project Crohnology : a patient network for th ... Read on »
Checklists my dear Watson. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain I was super intrigued to see a bit of Dr. Atul Gawande’s TED talk today via livestream and to hear him revisit The Checklist Manifesto which became so famous a few years ago ... Read on »
The beast of balance. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain If you've got 5-minutes, check out this honest and humble piece by Lily Altavena on balancing her Crohn’s disease flare-ups as a student at NYU: When Chronic Illness Interr ... Read on »
Food allergy fodder. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Having been hyper-aware of my own aversions for quite some time now (I break out in hives just thinking about littleneck clams!), it seems to me that food allergy ... Read on »
Medifactulous. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain “Get your facts first, then you can distort them as you please.” —Mark Twain For me, one of the hardest things about learning and growing with a chronic illness is deciph ... Read on »
Cure-all or quack remedy? by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain I get a lot of advice from people who don’t have Crohn’s disease or Wegener’s about what I should be supplementally taking and/or eating — and last time I checked, none of ... Read on »
Twitter goodness by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain I’ll keep this one short because this story is just so awesomely succinct (and a bit older, but every time I read it I smile). @ChrisStrouth tweeted “sh*t, I need a ki ... Read on »
Missing the bigger picture, literally. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain First, let me apologize. I have been a very bad blogger over the past few months, but I have a great excuse — I was getting married! And then I took a well-deserved break ... Read on »
Panama-monium. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain On a flight a few days ago I flipped open my in-flight magazine to this page (left) and thought, “Wow.” If you can’t read it well enough (sorry, bad photo), it says, “I ... Read on »
Old drug, new use. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain http://news.sciencemag.org/sciencenow/2011/08/database-finds-new-uses-for-old-.html?ref=hp I love reversible clothing. In fact, it is a small obsession of mine and I sti ... Read on »
Helping patients stay on top of prescription meds through design. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Love this piece by Smart Design’s Eric Freitag: Can Design Get People To Take Their Meds ? Absolutely. How does my mom know when she’s supposed to take X, Y, or Z pil ... Read on »
6 things to never say to a friend who's sick (and 4 things to say). by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain My good friend (thanks Alana!) shared this article with me a while back and I’ve been meaning to write about it ever since. I was reminded in particular about it when a f ... Read on »
Man robs bank for healthcare. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Yep. I’ve definitely thought about doing this before — I mean, if things got really bad and I needed to. Fascinating. And ummmm, quite telling I’d say = Man robs bank t ... Read on »
Living by numbers. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain I’m heading to TEDx Silicon Valley tomorrow at Stanford University and am excited to see Ron Gutman, founder of HealthTap and lover of all things health and smile-related ... Read on »
http://www.sundaysun.co.uk/new ... by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain http://www.sundaysun.co.uk/news/north-east-news/2011/04/24/lung-transplant-gives-fenham-teen-a-new-laugh-79310-28573517/ Read on »
PatientsLikeMe is finally like me. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain As a longtime fan of PatientsLikeMe *, I was ecstatic to see an email from them last week stating that Crohn’s disease is now a part of their patient-community. Upon furth ... Read on »
The kid’s speech. by Katie C. Patient Expert Posted in: Blog Posts in Chronic Pain Speech Buddies R Standalone on Vimeo . You know that moment you have as an adult where you suddenly realize how happy you are that someone pulled you aside early ... Read on »