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Kathryn .. Patient Expert

I live in England near to London. In the last year I was diagnosed with lupus, APS, arthritis, fibromyalgia and chronic fatigue. It has opened the door to many new friends, mostly online. I also am in the process of setting up a charity in UK to help people with invisible disabilities.... Full Bio
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Been a long time since I posted by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus I have not posted for a long time, but felt that the time was right to blog again. Last year I managed to get myself off the morphine that I was taking every day. I th ... Read on »
Been feeling unwell by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus I have not been on the blog for a while as I have felt so unwell. I usually will not admit how bad I feel, got it in my head that people do not really want to know. T ... Read on »
Went to see the nurse by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus I made an appointment to see the nurse because I have not felt so well for a few days. I was hurting and more worrying was having breathing problems. It just felt as if ... Read on »
Saturday by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus Today I was planning a lie in until my husband told me he had to go to a tutorial for his course. That meant he needed to get a train about 9:30 and it is about half an ... Read on »
Long time without a post by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus I have not posted on this blog for a while. I had to get stuff for our daughter for school and in the end I made myself feel so unwell. I hurt worse than I have in a ... Read on »
Missed appointment by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus On Friday I was sitting relaxing, it was about 10:20 and I was not washed or dressed. I was pleased that after Thursday night I could actually manage to walk. My left kn ... Read on »
Listen to your body by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus I was given a bit of advice the first time I went to pain management clinic, it was listen to your body. Well the last week I have not done that. I had a lot to do, and ... Read on »
Should we push ourselves and take the consequences, or take it easy? by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus Yesterday we had a day out in London. First I had to go and get my INR checked at the doctors’ surgery. It is below target again. I did wonder because although I have ha ... Read on »
Gloves and bags by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus I was looking for a bag on-line. After going out on Tuesday to a hospital appointment I decided that what I really needed was a fabric bag that was worn over the shoulder ... Read on »
A doctor who knew about lupus and APS!!! by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus Today I had to go for a check up at the hospital. I was diagnosed with ovarian cysts last year and since then they have been scanning me regularly and also blood tests. ... Read on »
How should you answer the question? by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus It is a question that is asked of people every day, How Are You? But how do you answer this question when the truth is most days, in so much pain I don’t know what ... Read on »
Sunshine and noise by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus Today for the first day in ages the sun was shining and it was hot. Typically there was an event in the school grounds behind our home and they had a sound system that w ... Read on »
Managed to go to the wedding by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus A lot has happened over the weekend, mostly as the result of going to a wedding. My husband, eldest son and I  went to the wedding of  friends of ours. We have known ... Read on »
The ups and downs of life by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus It has been a busy week, not what I expected when I looked at my diary. Monday I went with my husband to an ENT clinic. He has always had a problem with snoring, but ... Read on »
Is it pride? by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus After the last week I am so tired, it is like my batteries are almost flat. Also the pain I am in is indescribable. Yesterday we went to a wedding. I was not sure if I w ... Read on »
Facing Facts by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus Yesterday I went to a local shopping centre. It is what Americans call a mall as the shops are all undercover. It is a while since I was last there and I assumed that I ... Read on »
Human Barometer by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus I have a good friend who refers to herself as a human barometer. I never understood when people talked about how arthritis is affected by the weather, that is until my a ... Read on »
Having to ask by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus Something I have never been good at is asking for help. So now that I need help it is so difficult, even to ask for a cup of tea. I sit here wanting a drink and knowing ... Read on »
New ideas about DLA and AA from our government by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus I have been given permission to reproduce this article that was  on   http://www.benefitsandwork.co.uk/news/latest-news/1086-dla-and-aa-to-be-abolishe DLA and ... Read on »
How has that happened? by Kathryn .. Patient Expert Posted in: Blog Posts in Lupus The whole family have been unwell this weekend with a flu like something except me. Somehow they all caught it but it has missed me. Having said that I am well aware tha ... Read on »