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Lessons Learned from the Bionic Brigade (DBS Support Group) by Kate K. Patient Expert Posted in: Blog Posts in Brain Health It was a warm day in May 2005 in Sacramento, I felt as though I was the only person in the world getting DBS. My husband, Tom felt like he was the only spouse in ... Read on »
What Not to Expect from DBS by Kate K. Patient Expert Posted in: Blog Posts in Brain Health “My happiness grows in direct proportion to my acceptance, and in inverse proportion to my expectations.”   Michael J. Fox For many people with Deep Brain Sti ... Read on »
Making Life with Tremor a Little Easier by Kate K. Patient Expert Posted in: Blog Posts in Brain Health More than 10 million people worldwide, including Google co-founder Sergey Brin's mother, have Essential Tremor or Parkinson's Disease. Although those with Parkins ... Read on »
Which DBS is Safer and More Effective--Asleep DBS or Awake DBS? Data is Lacking. by Kate K. Patient Expert Posted in: Blog Posts in Brain Health No Data to Support Asleep DBA is As Safe and Effective As Awake DBS By Sierra Farris, MA, MPAS, PA-C Copyright 2014 Reprinted with permission of the author ... Read on »
Going Through a Bit of a Rough Patch by Kate K. Patient Expert Posted in: Blog Posts in Brain Health I’m hungry for a vegetarian pizza for dinner. I order online. I am grateful that I don’t have to talk to a person to order my pizza. The printer spits out my order confi ... Read on »
To Drive or Not To Drive? by Kate K. Patient Expert Posted in: Blog Posts in Brain Health   Hi, everyone, I am excited for my interview this month with Dr. Howard Kalter. The issue of driving is one that eve ... Read on »
Window of Opportunity by Kate K. Patient Expert Posted in: Blog Posts in Brain Health Review of Book: Window of Opportunity: Living with the Reality of Parkinson’s and the Threat of Dementia Author: Kirk Hall       Reviewed by: Kate Kelsall ... Read on »
Sharing or Keeping the Secret of Parkinson’s by Kate K. Patient Expert Posted in: Blog Posts in Brain Health By Kate Kelsall Everybody's got a secret, Sonny Something they just can't face Some folks spend their whole lives trying to keep it They carry it with them ... Read on »
The Best Parkinson's Blogs of 2014 by Kate K. Patient Expert Posted in: Blog Posts in Brain Health   I am honored and humbled by the following award received for my blog, Shake, Rattle and Roll. The Best Parkinson's Blogs of 2014 by Healthline http://www.he ... Read on »
Despite Parkinson’s, Making It a Great Day by Kate K. Patient Expert Posted in: Blog Posts in Brain Health Yesterday was a great day. I've had so few great days lately with Parkinson’s that I’m excited to share my positive experience. I take Broadway dance classes and ... Read on »
Adding Quality to the Lives of Those with Parkinson's by Kate K. Patient Expert Posted in: Blog Posts in Brain Health Roxann Diez Gross, Mary Spremulli and Debbie Tarakofsky have a lot in common. All three women are speech-language pathologists. They have dedicated their careers to help ... Read on »
Tired of Being a Trooper by Kate K. Patient Expert Posted in: Blog Posts in Brain Health One of my doctors recently said to me “You’re such a trooper.”  He was well-intentioned and said it as a compliment, and I accepted it as such. The doctor was refe ... Read on »
Couple Communication Strategies If You or Your Partner Has Parkinson’s by Kate K. Patient Expert Posted in: Blog Posts in Brain Health “People may not remember what you said or what you did but they will remember how you made them feel.”  Maya Angelou Effective couple communication is the foundation ... Read on »
Phone Phobia by Kate K. Patient Expert Posted in: Blog Posts in Brain Health I’m not afraid of brain surgery and have no fear of flying or dying. However, I'm terrified of the phone. I dread making phone calls, returning phone calls, leavi ... Read on »
GLOBAL COMMUNITY CONFERENCE ON PARKINSON'S DISEASE by Kate K. Patient Expert Posted in: Blog Posts in Brain Health "BEYOND THE LIMITS” WHEN:   Sunday, March 2 - Tuesday, March 4, 2014 WHERE: Keystone Lodge & Conference Center in Keystone, Colorado CONFERENCE DETAILS The ... Read on »
Put on a Happy Face by Kate K. Patient Expert Posted in: Blog Posts in Brain Health At one of our Rockyettes holiday dance performances, a member of the audience reported that one of the dancers wasn't smiling and looked sick. I was relieved to ... Read on »
When Acceptance is the Solution by Kate K. Patient Expert Posted in: Blog Posts in Brain Health I’ve grown weary of whining about it. I’m tired of trying to fix it. I’m frustrated trying to understand it. I have no adequate words to describe it. It is gradually chi ... Read on »
Considerations When Joining a Parkinson’s Disease Support Group by Kate K. Patient Expert Posted in: Blog Posts in Brain Health Mary Spremulli, the creator of Voice Aerobics , wrote an excellent article entitled “Support Groups Fill Important Void and Allow Some to Pay It Forward” at http://voice ... Read on »
12 Things You Shouldn’t Say to Someone Who Has Parkinson’s Disease by Kate K. Patient Expert Posted in: Blog Posts in Brain Health After reading Rachelle Friedman’s article entitled “10 Things You Shouldn’t Say to Someone Who Uses a Wheelchair,” I was motivated to write a Parkinson’s Disease (PD) ve ... Read on »