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Karen Henley

California
My husband was diagnosed with Early Onset Alzheimer's Disease 8 years ago when he was 36 years old (he has the familial type - both his mom and brother have already passed away from the disease). My children were 7 & 9 when he was diagnosed. I felt VERY strongly that not enough was being... Full Bio
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Courtney's Graduation by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia This past Sunday, May 19, 2013 Courtney graduated from Hofstra University. She graduated Magna Cum Laude, with Honors and was selected for Phi Beta Kappa. I could not be ... Read on »
Mike's Legacy by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia While it's easy for me to say that my children are one of Mike's most important legacies, I was touched today in the oddest of places to learn of another. I went to my doc ... Read on »
Genuine Happiness for Others by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia For the 11 years Mike was sick, we very often heard about friends and family taking trips, or even doing what seemed like mundane things to them, but would have been treats ... Read on »
Daily Struggles by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia The kids and I got through the holidays as well as I expected. Christmas was quiet as it was just us. It's times like this when I wish I would have been born into a larger f ... Read on »
Holidays by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia “Through the years we’ll always be together..if the fates allow, Hang a shining star upon the highest bough, and have your self a merry little Christmas now” F ... Read on »
Long Island Alzheimer's Foundation Honor by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Every year during the month of November - Alzheimer's Awareness Month - the Long Island Alzheimer's Foundation (LIAF) holds a candle lighting ceremony to honor those suf ... Read on »
Hurricane Sandy by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia A week before most news stations picked up on the story, my nephew, Steve Travis (my personal meteorologist) contacted us to let us know Long Island was expected to be hit b ... Read on »
The Process of Grieving by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia I am finally beginning to understand why, after the death of a loved one, they call it a “grieving process”. I just wonder how long this process will last, or if it will go ... Read on »
Walk to End Alzheimer's 2012 by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Yesterday we participated in the Annual Walk to End Alzheimer's. Our team, henley's heroes, raised approx. $3,500.00 (and still counting!) and we could not be happier. Despi ... Read on »
Happy 21st Courtney! by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Today Courtney turns 21 - where does time go?! Amidst all the sadness these last few months, I am reminded of how blessed I am to have two wonderful children. Like all moms ... Read on »
California Here we Come... by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia This past Monday Courtney, Brandon and I came home from our trip to California. 11 days out of the house, away from the daily stresses and routines that were really beginnin ... Read on »
This past weekend, the ... by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia This past weekend, the kids and I held our Annual Lemonade Sale for Alzheimer's - it was also 5 months since Mike passed. The "anniversary" date made it that much more ... Read on »
Trying to Find My Way by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Since my husband Mike passed away I have been in a strange place of limbo. For 11 years I devoted my life to caring for him. Alzheimer’s was an every day conversation and th ... Read on »
Surprise Visit by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Last night the kids and I were watching TV when the doorbell rang at about 9pm. We don't get many unannounced visitors, and if we do, it's usually our friend Tom. Last night ... Read on »
Summer Begins by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia It's been a while. Since I last wrote, Brandon celebrated his 19th Birthday (May 14th). For 8 of the 11 years Mike was sick, he wasn't able to go out and celebrate with us, ... Read on »
Day by Day by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia It's been a little over two months since Mike passed and it still feels surreal. Yesterday I found a bottle of one of his medicines that I missed, and the waterworks s ... Read on »
Alzheimer's Public Policy Forum in DC by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia This is the same post I wrote for mariashriver.com. I apologize to those who read both. This past week Courtney and I attended the Alzheimer’s Association Public Poli ... Read on »
Moving Forward by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Our life is beginning to fall into place, slowly but surely. Courtney, my brother and myself have been painting our living room. It had been years since it was last painted ... Read on »
Forgotten Words by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia I was going through old files on my computer when I came across this. I remember writing it one day about 2 years ago, thinking that when "the time" came, I would not have m ... Read on »
A New Normal by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia This is what I have been telling people we are trying to accomplish. For 11 years, we devoted almost every minute to caring for Mike, now that he is gone, there is such a hu ... Read on »