Health knowledge made personal

Karen Henley

California
Blog: http://henleysheroes.blogspot.com
My husband was diagnosed with Early Onset Alzheimer's Disease 8 years ago when he was 36 years old (he has the familial type - both his mom and brother have already passed away from the disease). My children were 7 & 9 when he was diagnosed. I felt VERY strongly that not enough was being... Full Bio
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Day by Day by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia It's been a little over two months since Mike passed and it still feels surreal. Yesterday I found a bottle of one of his medicines that I missed, and the waterworks s ... Read on »
Alzheimer's Public Policy Forum in DC by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia This is the same post I wrote for mariashriver.com. I apologize to those who read both. This past week Courtney and I attended the Alzheimer’s Association Public Poli ... Read on »
Moving Forward by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Our life is beginning to fall into place, slowly but surely. Courtney, my brother and myself have been painting our living room. It had been years since it was last painted ... Read on »
Forgotten Words by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia I was going through old files on my computer when I came across this. I remember writing it one day about 2 years ago, thinking that when "the time" came, I would not have m ... Read on »
A New Normal by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia This is what I have been telling people we are trying to accomplish. For 11 years, we devoted almost every minute to caring for Mike, now that he is gone, there is such a hu ... Read on »
February 28, 2012 ........ by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia This is the day that Mike succumbed to Young Onset Alzheimer's Disease. He was the bravest man I have ever known and battled this disease with dignity, compassion and love ... Read on »
Our Hero by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia http://www.newsday.com/news/health/mike-henley-47-loses-battle-with-alzheimer-s-1.3571830 Please click to see the wonderful story our Newspaper did on Mike's passing. Read on »
Mike is at Peace by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Today, heaven gained a new angel. Mike passed away this afternoon. He was the strongest, bravest man I ever knew ( beside my dad). Even though we will miss him terribly, we ... Read on »
The Unsung Heroes by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia As some of you may know, I have decided to take that step into attempting to write a book. While there are quite a few books about Alzheimer's out there, I don't know of any ... Read on »
To My Valentine by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia It is 1984 and I am working two part time jobs as I try to find a full time job after graduating college. I was working at both Friendly's Ice Cream and Channel Home Center. ... Read on »
Simple Truth by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia I posted this on Facebook, but I felt the need to post this simple truth here also In my entire life, I don't think I have shed as many tears as those that have been caused ... Read on »
24 Hours by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia In 24 hours: got a notice of Deposition for Brandon's car accident last year, Mike's aide called in sick, Mike's breathing heavy, he's got the beginning of two more sores (o ... Read on »
Medicaid Mess by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia I hadn't written about this previously because it upsets me SO MUCH. Mike has been on hospice for about 3 years. We originally started with another hospice, but they decid ... Read on »
Acceptance by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia For the last few weeks, Mike's legs and ankles have been swollen...edema. It's a sign that his kidney's aren't functioning well. This past Friday, I came home to find Mike b ... Read on »
Peace of Mind by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia We all know that money does NOT buy happiness, but it DOES give you PEACE OF MIND so that you can- Have health insurance - pay for car repairs - go to the dentist - provi ... Read on »
Interviews and Studies by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia The last few weeks the kids and I have participated in a few projects. For one we each spoke to a social worker from Hunter College who was doing research on the affects You ... Read on »
Happy Birthday Mike! by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Mike's birthday was January 5th...he turned 47. One of his gifts was a Pittsburgh Steeler T-Shirt (his all time favorite team. He fell in love with their uniforms w ... Read on »
Holiday Update Part II by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia Although we enjoy our Christmas together, we always look forward to my sister and her family coming in for New Year's. She likes spending Christmas in her own home with just ... Read on »
Holiday Updates Part I by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia I apologize for not writing sooner. Our Christmas celebrating began a little early this year, on my birthday (12/21) to be exact. Back in 2004 Mike spent about 2 ... Read on »
Christmas Woes by Karen Henley Posted in: Blog Posts in Alzheimer's & Dementia It's been a while since I last wrote I know, but it's typical for this time of year. I've been finding it hard to keep up the "holiday cheer", this year more than most. I k ... Read on »
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