Health knowledge made personal

Karen Henley

California
My husband was diagnosed with Early Onset Alzheimer's Disease 8 years ago when he was 36 years old (he has the familial type - both his mom and brother have already passed away from the disease). My children were 7 & 9 when he was diagnosed. I felt VERY strongly that not enough was being... Full Bio
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Birthday: December 21
 

Bio

My husband was diagnosed with Early Onset Alzheimer's Disease 8 years ago when he was 36 years old (he has the familial type - both his mom and brother have already passed away from the disease). My children were 7 & 9 when he was diagnosed. I felt VERY strongly that not enough was being done to find a cure for this disease because the general pblic felt it was just an "old person's disease". I became an advocate and my family and I have been on TV, newspapers and radio. I felt the more that people understood that this was NOT just and "old person's disease", then maybe more would get done to help find a cure.

Being a young family with EOAD, brings unique challenges every day. From raising children in this enviroment, to financial, to emotional - it's all been horrific to say the least. I began this blog a few years ago after my husband had been hospitalized, so friends and family could stay updated. I kept it up as yet another way to spread awareness and let people into my life as a careiver of a young person with Alzheimer's Disease.

My husband has been on hospice since September and is still living at home with us. I work full time and we have an aide to assist me 10 hours a day/7 days a week. He is the love of my life and I miss him every day.