Health knowledge made personal

Julie S. Patient Expert

Panama City, Florida
The Brain Tumor Journal blog (braintumorjournal.blogspot.com) is my mother's story of her 30+ years of experiences associated with meningioma brain tumors . She wrote her story to help others that face the same challenges and disabilities that she faced. She wrote this journal over a period of... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
PHYSICAL THERAPY by Julie S. Patient Expert Posted in: Blog Posts in Brain Health By this time, my leg had gotten well from the Phlebitis and I could at last say “Goodbye'' to those tight, white, support hose and Jack would no longer have to line up nu ... Read on »
MY SPEECH NOW by Julie S. Patient Expert Posted in: Blog Posts in Brain Health Apraxia of speech - a motor/speech disorder which makes voluntary/spontaneous speech difficult in that to speak correctly requires motor ... Read on »
Speech Therapy: Reading & Counting by Julie S. Patient Expert Posted in: Blog Posts in Brain Health Henri started me with the simplest of exercises, Matching Beginning Sounds ......more like child's play, but it wasn't that easy for me, even though I cou ... Read on »
SPEECH THERAPY for Aphasia by Julie S. Patient Expert Posted in: Blog Posts in Brain Health SPEECH THERAPY It's something I took for granted. I used it every day. If I had a thought or an idea I could open my mouth and say, “…. Now speak ... Read on »
Meningioma Brain Tumors-Statistical Recurrence by Julie S. Patient Expert Posted in: Blog Posts in Brain Health We, at this time, thanks to Nancy A, were in touch with a neuropathologist, Dr. Bill Whetsell, Jr., and learned from him that a meningioma tumor has about a 15% chance of ... Read on »
Seeking Answers to My Set Back by Julie S. Patient Expert Posted in: Blog Posts in Brain Health Jack called again for me, to make an appointment with the neurosurgeon in Columbia . “This is Jack Gray. I'm calling for my wife, Ashlyn...... ... Read on »
SET BACK on My Recovery by Julie S. Patient Expert Posted in: Blog Posts in Brain Health It started gradually....almost undetectable. It didn't seem like much at first but I began feeling uneasy about it. Then I sensed something ... Read on »
Neurosurgeon's Progress Report by Julie S. Patient Expert Posted in: Blog Posts in Brain Health GRAY, ASHLYN 4-5-83: “This lady returns today for her first checkup following a craniectomy and removal of a meningioma in the ... Read on »
MY DEAR FAMILY- Everyone Helped by Julie S. Patient Expert Posted in: Blog Posts in Brain Health Jack was having to do almost everything for me.... including helping me get dressed. He would have to tie my bows, help me get my hose on, hook my pearls, change my earri ... Read on »
Helpers Were So Appreciated by Julie S. Patient Expert Posted in: Blog Posts in Brain Health We were extremely thankful for three excellent therapists and we realized how fortunate we were to have adequate insurance to help pay them. I ha ... Read on »
A Typical Day by Julie S. Patient Expert Posted in: Blog Posts in Brain Health Breakfast Slowly work at getting dressed (so slow with just one hand) Appointment with either speech, physical or occupational therapy Lunch ... Read on »
1, 2, 3 –Leave My Outcome to God? by Julie S. Patient Expert Posted in: Blog Posts in Brain Health When the mail came that day there was another card from Polly A. She and Harvey both had been so thoughtful about remembering me. I was still having to struggle wi ... Read on »
Driving Again-a Year after Brain Surgery by Julie S. Patient Expert Posted in: Blog Posts in Brain Health Now that the protective plate for my brain had been put in, and the incision healed, Jack took me to Superior Motors and helped me buy my '8 ... Read on »
Treating the Infection at Home by Julie S. Patient Expert Posted in: Blog Posts in Brain Health It was a nasty complication.....infection had set in and would have to be treated intravenously. After three days in the hospital Ja ... Read on »
Complications from the Skull Replacement Plate by Julie S. Patient Expert Posted in: Blog Posts in Brain Health About a month later, because I was unable to see the top of my head in the mirror, I asked my daughter Sally, who is a nurse (on one of her many visit ... Read on »
Skull Replacement Plate=Slightly Less Paralysis by Julie S. Patient Expert Posted in: Blog Posts in Brain Health Dr. Paysinger seemed bewildered as to why I was showing signs of improvement in my right arm after the plate was put in. Instead of it just hanging limply by my si ... Read on »
The Plate that Protects my Brain by Julie S. Patient Expert Posted in: Blog Posts in Brain Health Even though the edges of the skull bone had been waxed during the removal of the tumor, the bone still felt sharp under my scalp. If I tried to sleep on my ... Read on »
Disability Struggles Eased by Loving Friends! by Julie S. Patient Expert Posted in: Blog Posts in Brain Health ...but friends were all so encouraging and meant so much to me. By now I was speaking in short phrases and was slowly ... Read on »
EPILOGUE- How You Can Help Your Loved One by Julie S. Patient Expert Posted in: Blog Posts in Brain Health EPILOGUE Blessed are you who.... -understand that it is difficult for me to put thought into words. -understand ... Read on »
Leave the Outcome to God by Julie S. Patient Expert Posted in: Blog Posts in Brain Health ''Leave the outcome to God,'' weighed heavily on my mind. One day, while walking around the pond, I asked myself, “Why wouldn't God want to heal me?” I thought He ... Read on »