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Jughead Patient Expert

Nottingham, Maryland
I'm a 47 year old married father of 2 that was diagnosed in 1987 with Relapsing, remitting Multiple Sclerosis. I retired from the Sheriff's Department in 1996, and have been a stay at home dad since then. 3 years ago my diagnoses changed to secondary progressive. I have had more accumulation of... Full Bio
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MS Drug Gilenya A Bust, Skating Show Weekend Has Arrived by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Started two months ago taking the new drug Gilenya, a drug design for relapsing remitting forms of multiple sclerosis.  I really didn't anticipate getting any benefit from ... Read on »
Cholesterol Down, So Is Vitamin D And Testosterone by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Went to see my primary care physician the other day, had blood work results to get.  Found out some good news, found out some bad, time will tell how much of either.  Good ... Read on »
Aged Pork, And Cribbage Anyone? by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Had one of my favorite meals, the mother's ham and cabbage.  She puts it all in a pot, potatoes too, and boils it for about 8 hours, killer!  We were just finishing up when ... Read on »
Visiting The Folks, End Of A Garden Empire by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) On the Eastern shore spending a few days with the parents.  The wife dropped me off Tuesday, has been in a bar ever since!  Plan right now is for us to meet her Monday at a ... Read on »
50th Birthday Gala, and Dragon Voice to Text Program by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) my 50th birthday came and and went, the wife pour off another gala party one of her specialties. It was a combination birthday party, now that we are both 50, we shared th ... Read on »
Helped Relocate A Family, And My Baby Is Getting Older by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Wow, what a few days it's been! We were able to help a family move from a house without electricity and heat, into a nice apartment in just a few days. Want to thank the ... Read on »
The Wife On Vacation And The Church Garden Died by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The wife is in Punta Cana for the week, soaking up the sun at an all inclusive resort. She and 3 childhood friends set it up in honor of them all turning 50. The wife was ... Read on »
Back Continues To Be A Problem, To Wheelchair Or Not Wheelchair by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Been paying for my pain management docs retirement home. I've had a series of injections, epidural, facet, and rhizotomy. Feels great when I have them, usually lasts a fe ... Read on »
Cigna Still Playing Games, And Our Friend Turns 50 Today by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) All my Cigna problems seemed to have been taken care of? We spoke with a young woman, and she spoke English, and she went above and beyond to take care of our problem, kud ... Read on »
Numbness In Hands And Arms, And I Want To Be A Rabbit Rancher by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Make a fist, then clinch it 20 times a minute, that's what today brought. Also brought the blues on in torrents! It's always right there, like to say just below the surfa ... Read on »
No Jobs To Be Found, MS Eyes Slowing My Driving by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) What a horrible time it is to be looking for work, any kind of work. The girl had a fit of a time finding a part time job, and the boy has worn himself out looking for ful ... Read on »
Stop Buying Congress Breakfast, and Kid Cleaning Crew by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Saw a piece on the news tonight, department of defense spent $12 for bran muffins, $10 brownies, even coffee that was something like a billion dollars an ounce, crazy! I i ... Read on »
Changing Neurologist, MS Changed Me by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Waiting to hear from the pharmacy, going to do a home infusion of go juice, maybe something that will become a regular gig.  Neuro wants me to go see a different doc, one t ... Read on »
More Insurance Battles, MS Beat Me On Church Garden by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Got my insurance straitened out, if I had medicare part B! Got all new EOB's that said Cigna was paying the "supplemental" portion of the bills, medicare part B would cove ... Read on »
Take My Medicare, Please! by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Having a horrible time with my insurance company, Cigna. The county switched us over from Mamsi, so that was my "choice". That was the hundredth time they switched up, no ... Read on »
MS Ate My Right Hand, And Home Surgery Was A Huge Success by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Coming to grips with how fast the right hand is becoming nothing more than a fancy paperweight. Coming to grips, damn, I'm funny even when I don't try! The dead feeling i ... Read on »
Laundry For The Homeless, and 3 Falls In The Yard by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Went for wash day with the homeless dudes, only one showed up to do laundry, and one to visit, have to admit, a little disappointed! Way too many lunches as well, I think ... Read on »
Great Pool Day, And Harford County Restaurant Week by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) What a great pool day, not too hot, but the water was nice, perfect. The wife and me floated, talked, just the sound of the next door neighbors playing Yatzee. We got ol ... Read on »
Multiple Sclerosis And Heat, And Visiting Family In Boston by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) It is like Africa hot in Baltimore, or what I think of as Africa hot, the days you see the lions laying next to gazelles, too hot to eat them. Gazelles could probably eat ... Read on »
Koon's Chevy Salesman From Hell by Jughead Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) So it's new car time, a time I put up there with taxes, surgery, and spending time with that one relative... you get my point. I HATE IT! When did reliable used cars get ... Read on »