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Jozephine

I've been living with Chronic Fatigue Syndrome and Fibromyalgia for most of my adult life although I didn't know it. It really took a hold six years ago when I was working in a stressful job and a number of big life events happened in a short space of time. I crashed big style. It took another... Full Bio
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Unravelling contd. by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Thanks all for your supportive comments. It really helped to blog it out. My fears about the psychiatrist not understanding were completely unfounded. He, also, was very re ... Read on »
Unravelling by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Haven't blogged in a while and that's because I've been a bit better. When I'm feeling better I do more and am away from the computer more. It's been a long haul crawling o ... Read on »
Recovering and Volunteering by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I continue to recover from the benefits debacle and am approaching something like my old baseline. Still haven't had any money yet but I rang the DWP yesterday and it's on ... Read on »
Repairs by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome It's being quite a long crawl out of the CFS black hole the tribunal dug for me. I've had a couple of massive 'wobblies', been rather awful to live with, and my push/crash ... Read on »
Good news by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome It's good news! The tribunal set aside the decision made by ATOS and awarded me 21 points over the one point I received at the previous assessment. They are going to reinst ... Read on »
All set for the big day by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I'm all set for the benefit tribunal on Tuesday. I've still got a letter to collect from the doc's. My doctor is usually pretty good about this sort of thing but I saw a di ... Read on »
Shock by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Things went from bad to worse on Friday when I got a letter informing me my Disability Living Allowance would no longer be awarded as a result of the medical assessments th ... Read on »
Culinary distractions by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome It's so windy this morning. The empty fireplace I'm sitting next to is 'wuthering' and all is slightly surreal as the sun is out but the trees are thrashing. I'm worried fo ... Read on »
Benefits anxiety by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I'm still in rather a relapse after my Damson Day efforts, and all the anxiety surrounding my welfare benefits. Last week I got a bus to my local Citizen's Advice Bureau in ... Read on »
Interesting Times by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome The last couple of weeks have been crazy. I've been running on fumes and adrenalin but, oh it's been fun! The pay off has been severe post-exertional malaise for the last t ... Read on »
Busy, busy bee - aka slightly manic by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I'm in a state of high anxiety at the moment. I'm an anxious person anyway but this was mainly triggered by, don't laugh, a mental health worker. With the cuts in public sp ... Read on »
Birds, benefits and buses by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Interesting how just acknowledging my frustrations has changed things. Until Lee Lee mentioned it, I hadn't seen my dependence as a loss. And AJ hadn't been particularly aw ... Read on »
Causes and Effects by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Yesterday was a pile of the proverbial. I was deep in Post-exertional malaise anyway after a weekend of family outings and community togetherness. On the Friday I had rung ... Read on »
A mixed bag by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Desperately trying to think of something interesting to blog about. During the course of my usual day I think very deeply about things and have some fascinating dialogues w ... Read on »
Crashola by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I'm having a post-exertional day - you know, the kind of day where you can only just get dressed, feebly start and stop several activities before finally giving in. Not sur ... Read on »
Home again by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I travelled home yesterday after visiting my daughter and her poorly bloke for a few days. He's much better now and they seem back to normal. I left them with a cleaner kit ... Read on »
Coming up for air by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome It's all been a bit erratic and difficult to handle recently, which I think is reflected in the difficulties folk have had accessing my blog. I felt very exposed suddenly a ... Read on »
Sleep Walking by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I'm on week two of the new drug and am up to three quarters dose. I've noticed a few things such as I'm much more aware of my depression. It's so difficult to feel motivate ... Read on »
Silly Me by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Thanks Nina! I found all my comments waiting to be moderated. Hooray. Gone private again. Double hooray. Normal service etc etc Read on »
Have made the blog open again ... by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Have made the blog open again for the time being. Not having my online buddies was worse than the unlikely threat of being monitored. I may have to review this - or start ... Read on »