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Jozephine

I've been living with Chronic Fatigue Syndrome and Fibromyalgia for most of my adult life although I didn't know it. It really took a hold six years ago when I was working in a stressful job and a number of big life events happened in a short space of time. I crashed big style. It took another... Full Bio
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"You can't always get what you want . . . by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I know one reason for my current fatigue is all the emotion I'm processing at the moment. I find myself grappling with a grief as big as anything I've faced before. It's been ... Read on »
"Your assessment shows that you are capable of work" by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Have made the blog open again for the time being. Not having my online buddies was worse than the unlikely threat of being monitored. I may have to review this - or st ... Read on »
"Post-exertional Malaise" aka feeling really crap by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome One thing that's good about the term 'post-exertional malaise' is that it doesn't contain the word 'fatigue'. The day before yesterday I chased my dog up a steep incline, re ... Read on »
'It is not growing like a tree' by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome It is not growing like a tree In bulk, doth make Man better be; Or, standing long an oak, three hundred year, To fall a log at last, dry, bald, and sere: A ... Read on »
'It is not growing like a tree' by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome It is not growing like a tree In bulk, doth make Man better be; Or, standing long an oak, three hundred year, To fall a log at last, dry, bald, and sere: A l ... Read on »
'Tis the season to be jolly. by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome The last couple of days I have been whanging between push and crash like a rubber ball bouncing on concrete with each bounce larger than the one before - push CRASH, push ... Read on »
A bit of a leg up by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I woke up this morning with hope in my heart for the first time in months. I saw my doc yesterday, who since I saw her last, has reviewed my notes with a fine tooth comb. I ... Read on »
A Breakthrough by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome At last, a bit of a breakthrough! I saw the GP's counsellor the day before yesterday and was immediately able to strike up a rapport. Within about half an hour we'd figured ... Read on »
A breath of fresh air by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Why is this Winter being so difficult and tenacious? After the exertions of the weekend, my energy envelope shrunk to almost nothing and my mood took a dive. I've seen the ... Read on »
A day early by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Every so often one's turn comes up for the Incapacity Benefit medical assessment. In the UK we are in the process of going over to a new type of welfare payment for those u ... Read on »
A Discovery by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Well, I spoke to the police yesterday and they were extremely helpful. I feel I've taken all the steps I need to take in order to stay safe, and A is backing me up. Zero toler ... Read on »
A little pissed off. by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome A couple of days ago I received my renewal form for incapacity benefit. It's a hefty old thing and will take a few days to complete because fatigue and cognitive dysfunctio ... Read on »
A Lull by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Things are settling down again and with that, I've got a little spare energy which I'm using to reintroduce my morning stretch routine. Calm, calm, calm. Suddenly my litt ... Read on »
A mixed bag by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Desperately trying to think of something interesting to blog about. During the course of my usual day I think very deeply about things and have some fascinating dialogues w ... Read on »
A Night Out by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I actually went out the other night - yes, in the evening. A. took me to see a band that his friend plays in. They were very loud. It took me back to the early eighties w ... Read on »
A Random Act of Kindness by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Yesterday morning, my neighbours who share my courtyard and are only there weekends, did me an enormous favour. They emptied my many flower pots, stacked them and took away th ... Read on »
A rant, a pebble and some serious nothing by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome I loved this articulate rant and I thought I'd pass it on. You may already have seen it if it's doing the rounds. I found it at Hege Renate's blog - Tired of ME. It's called ... Read on »
A Set Back by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome Oh how horribly prophetic the last paragraph of my last post was. I reminded myself that, even when things are going well - this too shall pass. Yesterday, a mild thrush infec ... Read on »
A Setback, or maybe a huge leap forward? by Jozephine Posted in: Blog Posts in Chronic Fatigue Syndrome After this week's brief flowering I had a bit of a setback. My partner's ex-wife has significant mental health issues and she has found the stress of the marriage break up ... Read on »