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Mission Accomplished! by jonhoward1 Posted in: Blog Posts in Cancer I was going to call this post "A Little Bit of Everything", but fortunately my plans have changed!  I did it!, or should I say "Dr. Kreitman and The NIH Trial to Treat F ... Read on »
All Hail Ra by jonhoward1 Posted in: Blog Posts in Cancer I know it's been too long since my last post! I've got lots to discuss and I'm short on time right now, but I wanted to share an interesting "Science Daily" article tha ... Read on »
I Got Chills...They're Multiplyin' ... by jonhoward1 Posted in: Blog Posts in Cancer You've got to be kidding me!!! Two flus in 1 month ??!!!! I couldn't believe it.  The baby came down with flu A on February 21st.  I started developing symptoms 2 days ... Read on »
Rituxan, Flu and a Spike in Counts too ,,, by jonhoward1 Posted in: Blog Posts in Cancer I've been holding off this post until I had enough new data to share to make it worthwhile, but  I didn't realize I'd get the flu while I was waiting.  Between treatment ... Read on »
Hairy Cell Trivia by jonhoward1 Posted in: Blog Posts in Cancer Thought I'd put together a few trivia questions for those of you who want to test your hairy cell leukemia knowledge Questions1) What type of cells are hairy cells believ ... Read on »
Kinected by jonhoward1 Posted in: Blog Posts in Cancer My fascination with GA101 continues to grow.  It's a third generation monoclonal antibody (mAb) that mediates ADCC 5 to 100 times more ... Read on »
Rewind... by jonhoward1 Posted in: Blog Posts in Cancer I had a clinic appointment yesterday and got my FACS and BMBx results Peripheral blood flow is unchanged over the past 3 months and holding at .04% hairies. Aspirate flow ... Read on »
Restaging by jonhoward1 Posted in: Blog Posts in Cancer Monday was a busy morning for restaging at NIH        1) 17 vials of blood at 7 am         2) 45 minutes in the MRI hotdog chamber at 8 am (sounded like I was surrounded by ... Read on »
I Want a New Drug ... by jonhoward1 Posted in: Blog Posts in Cancer I want a new drug...  Okay, maybe not yet, but it looks like there are lots of new potential candidates for treating HCL that still have yet to be explored.  Two posts a ... Read on »
I Predict Pain! by jonhoward1 Posted in: Blog Posts in Cancer Prediction? ... Pain! Aside from that, I've been dabbling in some new favorite hobbies: studying organic chemistry, molecular biology and bioinformatics so that I can bet ... Read on »
A New Hope by jonhoward1 Posted in: Blog Posts in Cancer Good news!  The latest FACS results from blood taken on September 30th indicate no change in the peripheral blood hairy cell burden or the percentage of lymphocytes that exp ... Read on »
Double Trouble by jonhoward1 Posted in: Blog Posts in Cancer The tumor load in my peripheral bloodstream doubled over the past 3 weeks.  I had a FACS done on August 31st, and the report indicated the percentage of hairy cells increase ... Read on »
The FACS of Life by jonhoward1 Posted in: Blog Posts in Cancer You knew it was only a matter of time before I had to use that corny title for a blogpost, but bear with me, it follows a coherent theme. Other candidate titles for this ... Read on »
Moving the Rock. by jonhoward1 Posted in: Blog Posts in Cancer The rock has moved! I received my bone marrow biopsy results yesterday.  They read as follows: "No morphologic or immunohistologic evidence of residual hairy cell le ... Read on »
New Arrival!!! by jonhoward1 Posted in: Blog Posts in Cancer I'm proud to announce the arrival of our second child!!! Weight:  9 lbs, 8.3 oz. Height:  21" Ingredients: lots and lots of sugar, spice and everything nice. B ... Read on »
Benefits of NIH HCL Trial Participation by jonhoward1 Posted in: Blog Posts in Cancer I've read a lot of bulletin board posts with various insights regarding participation in the NIH Trial for Newly Diagnosed HCL Patients so since I'm participating in the tri ... Read on »
Turbulence by jonhoward1 Posted in: Blog Posts in Cancer The approach for my soft landing has been suddenly interrupted by some unexpected turbulence. I had a CBC and FACS performed on Monday. For the most part, my counts were g ... Read on »
Soft Landing by jonhoward1 Posted in: Blog Posts in Cancer I just had another complete blood count (CBC) on Monday and things look like they're stabilizing. The platelets are still low but within a normal range for remission and si ... Read on »
A Hairy Update by jonhoward1 Posted in: Blog Posts in Cancer The past two months have been great! The February snowpocalypse gave me an opportunity to test my stamina shoveling and snowblowing, and I felt great afterward. I even sho ... Read on »
It is a Happy New Year! by jonhoward1 Posted in: Blog Posts in Cancer My 8th and final Rituxan treatment was last Monday, December 28th, and it feels great to be done. I'm in great shape now, and the Holidays were wonderful. I got to spend l ... Read on »