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Jonesy Patient Expert

California
BRCA1 and POSITIVE! Documenting my feelings and decisions made following a positive diagnosis for the breast and ovarian cancer gene; BRCA1.  From living with a family history of breast cancer that touched 8 women to recovering from major surgery.  My blog is honest about my journey... Full Bio
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72. Nip Nip? No way! and 3D Nipple Tattoos by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer My nipple reconstruction has been a thorn in my side for a long time now. What am I doing, getting them or not?! I couldn't decide for a long time but actually, now, I have ... Read on »
71. OkeyDokey Ovaries by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Just a quick report to say that I my ovary screening (by transvaginal ultrasound or TVU) from a few weeks ago was confirmed by letter today as 'NORMAL'. Phew.. And t ... Read on »
41. BRCA Support Group anyone? by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Its been a couple of weeks since I last posted, believe me, it is not because of lack of things to post, just very busy dealing with the complications of what is my daily li ... Read on »
40. Operation Boob crunches into 4th gear! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Back at the hospital..again. On arrival the car parks were rammed again. I eventually found a space and faced an immense battle with the ticket machine. Being a bit rubbi ... Read on »
39. Pop goes the bubble..our hearts fall down by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Yep..pop went the smallest of bubbles that contained a remote idea or maybe a hope that I could have children of my own..burst into nothingness. After my meeting with my ge ... Read on »
38. BRCA Umbrella - Social Network for BRCA+ people by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I stumbled on an excellent, user friendly social networking site, 'Ning' that allows you to set up your very own social network - so I did! I called it BRCA Umbrella so tha ... Read on »
37. Bang, bang, bang my head..gently on my keyboard by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Sometimes..just sometimes you have to wonder if you are actually meant to be here. I do, but just sometimes. It seems that everything I do at the moment conspires against m ... Read on »
36. MRI Breast Screening - Surveillance for BRCA by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Following my recent discovery of the lack of funding and availability for MRI breast screening for women with a high risk breast cancer, I decided to start investigating MRI ... Read on »
70. Bra meltdown by Jonesy Patient Expert 1 Comment Posted in: Blog Posts in Breast Cancer So I am now a full time student at University. It's taking some getting used to but I am loving it so far, not a lot of work started yet but it's still intro stage I gue ... Read on »
69. Body changes, stitches, spots and looking back by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer It's been a whole month since I last posted, proof that life moves on. I've helped paint the house (in short bursts and a long overdue job!) and been on holiday in the meanti ... Read on »
68. Pause on the ovary plucking? by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I got a letter the other day from my Genetics Counsellor and a further letter from my Consultant Clinical Geneticist, both stating that I was likely in no immediate risk from ... Read on »
67. Light at the end of the boob tunnel by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer The boob tunnel? Light? Yes..yeah. Today I saw the end. I don't want any complications thank you, just straight forward tidying up surgery, just like I've ordered. I am s ... Read on »
66. Off to Plastics by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer It's been a while since I last posted. Not a lot and a lot happening in life. Today, in an hour, I have my first meeting with a Plastic Surgeon to review my current phys ... Read on »
65. Can I still do that? by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Three months ago I thought there were things that I would never do again or do them weakly, yet here I sit and ponder the obstacles I have overcome, all the small ones and the ... Read on »
64. So how am I doing 3 months on? by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Great! Apart from some setbacks emotionally which I am sorting out now, great. Much greater than I imagined. The warnings attached to having my kind of surgery are that ... Read on »
63. Did you want nipples today? Sorry..we cancelled by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I am thankful for my strength of composure and character in what has been the farce of organising my tidying up surgery after my breast reconstruction op. I could have lost t ... Read on »
62. My Race for Life by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer It's here..tomorrow..Race for Life fundraising 5k for Cancer Research UK. I've raised over £600 so far. Tomorrow will be hard last time it reduced me to tears seeing all ... Read on »
61. Nip 'n' tuck 'n' physio by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer 10 days have passed since my last blog post. I haven't heard from anyone about the results of my blood test so I must ask my GP tomorrow. I am getting fed up with not having ... Read on »
60. Boob flash count today = 4! 2 expected, 1 unexpected and 1 surprise! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer As they happened, here are the memorable things that happened today surrounding my check up appointment: 1. I DROVE MY CAR! For the first time in 2 months, I drove my c ... Read on »
59. Time for a check up..another flash episode by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I've lost count with how many times I've had my boobs inspected now. Today I will go to see my surgeon and breast care nurse who will rate the progress of my new boobs. ... Read on »