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Jonesy Patient Expert

California
BRCA1 and POSITIVE! Documenting my feelings and decisions made following a positive diagnosis for the breast and ovarian cancer gene; BRCA1.  From living with a family history of breast cancer that touched 8 women to recovering from major surgery.  My blog is honest about my journey... Full Bio
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36. MRI Breast Screening - Surveillance for BRCA by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Following my recent discovery of the lack of funding and availability for MRI breast screening for women with a high risk breast cancer, I decided to start investigating MRI ... Read on »
37. Bang, bang, bang my head..gently on my keyboard by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Sometimes..just sometimes you have to wonder if you are actually meant to be here. I do, but just sometimes. It seems that everything I do at the moment conspires against m ... Read on »
38. BRCA Umbrella - Social Network for BRCA+ people by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I stumbled on an excellent, user friendly social networking site, 'Ning' that allows you to set up your very own social network - so I did! I called it BRCA Umbrella so tha ... Read on »
39. Pop goes the bubble..our hearts fall down by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Yep..pop went the smallest of bubbles that contained a remote idea or maybe a hope that I could have children of my own..burst into nothingness. After my meeting with my ge ... Read on »
40. Operation Boob crunches into 4th gear! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Back at the hospital..again. On arrival the car parks were rammed again. I eventually found a space and faced an immense battle with the ticket machine. Being a bit rubbi ... Read on »
41. BRCA Support Group anyone? by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Its been a couple of weeks since I last posted, believe me, it is not because of lack of things to post, just very busy dealing with the complications of what is my daily li ... Read on »
42. Where am I? 27 days to Operation Boob Removal! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I decided to stop pacing around the house trying to fill my day..I decided to make coffee, sit down and get this out of my system. My last blog was sadder than I intended ... Read on »
43. All aboard! This train is going FAST FORWARD>>> by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer My phone rang earlier..Private, just missed it. I picked up the message left, it was my surgeon, Dr Drabble. He just said he would call back again or if I could, to call him ... Read on »
44. Make way..here comes the Operation Queen! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer The title is for my hubby - he (and my sepson) call me the Queen of all things..the Bead Queen (hence my jewellery website name www.beadqueen.co.uk), Gardening Queen, Photogra ... Read on »
45. Pre-Op Check - all systems go by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I spent hours in the hospital yesterday having my blood taken, swabs up my nose, my groin and mouth for MRSA testing, blood pressure, weight, height, filling in forms, answeri ... Read on »
46. With danger boobs - pre-op blog entry by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer So, here I am. Less than 24 hours until I am sat in my own hospital room on the final countdown. I have been fine all day..all week actually but today I had a 'moment' when ... Read on »
47. One day to go..one day by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I look normal again. On monday i was so pumped with fluid for the op i had no creases in my eyelids. Look what i week can do! And 2 nights of decent rest. Full update w ... Read on »
48. Back Home...at last by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Hooray!! I made it home..in one piece(?)..or several rearranged pieces anyway. The sun is shining and my garden has blossomed with a beautiful week of sunshine. I can no ... Read on »
49. The dressings are OFF! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I have realised I use far too many exclamation marks!!! I am gonna try and give it up a little (if I can). Not quite up to recalling my week in hospital but I will soon. ... Read on »
50. My week in hospital - Day -1 and Day 1 by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Arriving at hospital - Sunday 15th March 2009 Arriving at Derriford Hospital was freaky - this was it, my time..my operation. Chris was cool and calm as usual. We made o ... Read on »
51. My week in hospital - Day 2 to Day 7 and home we go! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer This is the biggy - the full hospital encounter. Day 0 and Day 1 were spent getting pumped with fluid and mostly on the operating table and so I recalled the day leading u ... Read on »
52. Recovery time by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I have been home for 11 days now and it's been 17 days since my surgery and all is going very well. When I came home I was a bit of a mental mess. I had become used to n ... Read on »
53. Where has the funny gone? by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I'm all out. I thought I'd experience the misery path for a little while - didn't like it at all so I have battled through the brambles and thorny gorse bushes back to the po ... Read on »
54. And the results are...(drum roll please)... by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer My breast tissue dissection and examination after full surgical removal was... Clear - Normal - No pre-cancerous or cancerous cells detected. It is official - ... Read on »
55. Progress and challenges by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer So here I am, 3 weeks and 5 days on from surgery. I didn't to document every up or down day as they happened, or spend all my time fixed to my screen either. That's a good t ... Read on »