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Jonesy Patient Expert

California
BRCA1 and POSITIVE! Documenting my feelings and decisions made following a positive diagnosis for the breast and ovarian cancer gene; BRCA1.  From living with a family history of breast cancer that touched 8 women to recovering from major surgery.  My blog is honest about my journey... Full Bio
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92. Not feeling pooped out by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Ten days ago I had my latest surgery but right now, it is the middle of the night and I have things on my mind.  I am worried.  I am not pooping. This is not good.  The las ... Read on »
91. Operation Finale : Phase One = Complete by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I'm lounging in bed with lots of pillows, cups of tea, Jurassic Park and moggits.  Two days ago I went in for my (take a deep breath......) bilateral breast reconstruction ... Read on »
90. Pre-Op for the Finale (Phase One) by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer After a second night of insomnia and only 2 hours sleep I had to get up for my Pre-Op assessment on Thursday. What is a Pre-Op? Pre-operative assessments involve blood pr ... Read on »
89. Sporty stuff - the challenges and limitations by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer There are a number of posts that I have been meaning to write recently.  This one is about sport. When I was a kid, I lived on a bike, dangled from trees, swung on ropes, ... Read on »
88. Podge, Pondering & Self-Esteem by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer For the last 3 years I've enjoyed some hard earned emotional respite and peace from my genetic breast cancer worry.  Facing more surgery in the not too distant future has ne ... Read on »
87. Plumping my pillows by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer What an absolutely gorgeous day it was today.  As I drove around the fringes of the city towards the hospital, the school kick out traffic slowed my pace.  I was able to peo ... Read on »
86. Fat transfer appointment...tomorrow! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Note:  All links used in this post are NHS pdf files and previous posts within this blog. After a couple of phonecalls to comedy surgeon's secretary, an appointment arriv ... Read on »
85. Justification for Cleavage by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer A bit of someone else's cleavage Cleavage.  I miss having cleavage. I would like enough to a) wear sexy bras again b) be able to nuzzle into If y ... Read on »
84. Before I actually say no to the boob plumping by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I have just seen some fat transfer videos and can't believe how amazing the results When I was keen on this surgery a while back, comedy surgeon reckons it wasn't really wor ... Read on »
83. Time to get Nipple-tastic! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I was unveiled for his perusal.  The eyebrows raised and a pleasant or surprised look crossed his face (probably a mix of both, it was hard to decipher).  He didn't say a wo ... Read on »
82. Unveil the revisions nurse! by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer A lot has happened since post 81. Bouncy Ball Therapy so I will try not to waffle on. The update for today is really that I am fresh from a visit to see my GP nurse, af ... Read on »
81. Bouncy Ball Therapy by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Unfortunately not a space hopper, just a regular gym ball :( Finally I have a physio who really knows what is going on inside my body and has identified and recreated ... Read on »
80. Its been 16 months by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Well where has the time gone? Its been hard work. I have been dreading writing this blog entry, I never wanted to be an anti-reconstruction surgery patient but the last 16 ... Read on »
79. Save our BRCA Support Group - BRCA Umbrella by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I have a numb bottom and back ache. Been sat here all day long putting some serious legwork (more like brain and finger work) into raising funds to help save our precious o ... Read on »
78. Breast Cancer Care Family History Forum UK by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer It was a bit lastminute.com but I made it to London (UK) to the first Breast Cancer Care Family History Forum. It was so good to finally meet two of BRCA Umbrella's A ... Read on »
77. Out of touch by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I went awol for a bit there. Sorry folks. Nothing BRCA related, well, not really apart from the abnormal CA125 (ovary screening blood test)that came back and I had to rete ... Read on »
76. Nip n Tuck Cancelled by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Has it really been 4 months since I last posted? Shocking!! It is because nothing at all has moved forward since my last post, in fact it has all gone backwards. They can ... Read on »
75. Physio, Tidy Up & Fix It Surgery by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer Happy New Year All! I am joining the January surgery mob (other BRCA Sisters out there are also on the list and we step forward together). On 16th December I had an ap ... Read on »
74. Strong, Weak. Weaker. by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I have reached the point of no return, I cannot continue with the pain and problems I am having without expert opinion. I am a head down, get on with it person and I was re ... Read on »
73. I need your vote by Jonesy Patient Expert Posted in: Blog Posts in Breast Cancer I'm glad I've got your attention and now that I have, can you help? I have a one answer poll posted in my sidebar (see right) and would like your vote. The more who ... Read on »