Joan ..'s Posts - Wellsphere

You Can Come Along for the Ride, But I Won't Let You Drive by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) You can come along for the ride, but I won’t let you drive. Tell me your story, talk about your adventures, show me your paths, share your journeys. But ... Read on »

What to Take on a Heroic Journey? (Provence Saga Continues) by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) In the mythology of a heroic quest, the hero will have to undergo many trials and tests. Usually before the journey begins, the hero is provided with special tools that w ... Read on »

Preparing for Provence - After the Call is Answered by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) Dragon Quest Yes, I have let go of my fear of travel, and will go to France for one week in June. This will be less like a summer vacation and more like ... Read on »

Preparing for Provence - Answering the Call by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) "All travel is inner travel... our trip is very much a journey of self discovery and personal transformation." Joseph Dispenza, from "The Way of the Traveler." I a ... Read on »

Want to Wish Me a Very Happy Birthday? by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) In honor of my upcoming 54th birthday (yes, I'm being honest about my age), please consider making a donation to my MS fundraising efforts. For the fourth year in a row, th ... Read on »

YouTube Therapy: Making MS Manageable with the World Wide Web by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) This Guest Post from Katie Brind’Amour provides a broad look at the variety of on-line videos to help our myriad MS symptoms. Thanks, Katie, for such a good overview. ... Read on »

Wheeler's Wobblers MS Walk Team Fundraiser 12 March at Ruby Tuesdays by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) Treat yourself to a nice lunch or dinner and join the Wheeler's Wobblers MS Walk Team to raise money for MS Research and Programs. We've partnered with Ruby Tuesdays res ... Read on »

Laughter as Medicine by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) Laughter is the best medicine, so they tell me. This certainly did make me feel good - click on the picture below to see the video. Read on »

"Fatigue" by Laurie Clements Lambeth by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) This is a recent post by Laurie Clements Lambeth on the National MS Society's blog, and really hit home with me. If you have MS fatigue, you will probably resonate with h ... Read on »

So I'm Playing This PC Game... by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) So I’m playing this PC game. It’s a “hidden objects” game where I go into rooms of a mansion and find hidden coins and specific objects to sell. I get m ... Read on »

The Second Bluebird Brood by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) Just a few weeks after the first brood of Eastern Bluebirds left the nest, momma laid four more eggs. When I checked today, I discovered that they had just hatched. One ba ... Read on »

Bluebirds are fledging! by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) We watched two of the five bluebirds fly away from the nest box this morning, and a third keeps poking its head out of the window. Both the male and female are still around ... Read on »

MSAA Ambassador Missy Franklin Makes US Olympic Swim Team by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) Cool news from the MS Association of America (MSAA), headquartered in New Jersey. Missy Franklin Makes USA Olympic Swim Team ... Read on »

Bluebird Soap Opera? by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) A bluebird pair set up house in our backyard nest box. It was love at first sight... But then he became extremely jealous, and obsessed that no other bird show any inte ... Read on »

Wheeler's Wobblers Wrap Up Report by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) I just realized that I never reported the end result of the 2012 MS Walk in Wilmington on this blog ( blame Facebook ). So drum roll please.... The Wheeler's Wobbl ... Read on »

MS Walk in Wilmington, DE, on April 14th by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) The Wheeler's Wobblers MS Walk Team is counting down the days until our Wilmington MS Walk: 5 weeks and 2 days to go until the big wobble at the Wilmington Riverfront, F ... Read on »

March is MS Awareness Month! by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) Hello! Remember me? Okay, it's been a while since I've posted a blog or hosted a chat, but I'm coming out of retirement because March is MS Awareness Month (in the ... Read on »

Patient Who Died on Gilenya - the rest of the story... by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) As suspected, there was more to the story of the patient who died within 24 hours of taking Gilenya . Julie Stachowiak, at MS.About.com writes that the patient was on medic ... Read on »

Happy Holidays! by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) I wish everyone a happy holiday season. You aren't seeing much of me right now because the sensory overload of seasonal parties and gatherings drains everything out of me. ... Read on »

FDA MedWatch Alert for Gilenya by Joan .. Patient Expert

Posted in: Blog Posts in Multiple Sclerosis (MS) Just by chance, I opened the FDA MedWatch alerts page for prescription drug recalls or problems (remember the alcohol pad recall?), when what to my wondering eyes should app ... Read on »

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