Health knowledge made personal
› Share page:

Posts

Sort by: Most recent | Name
The new spot... by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Come join me over here so I can quit posting in 2 spots. Since Novartis decided to change the name of the drug from Fingolimod to Gilenya, I redid my blog and have a new hom ... Read on »
Starting a weight loss plan and feeling better by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I started the TRANSFORMS Fingolimod (now Gilenya) Phase III trial way back in August of 07, and one of the known side effects of the drug was a slight asthma-like breathin ... Read on »
The Muffins Win by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I give up. I found the best recipe for Golden Raisin Oat Bran Muffins and the very first time I made them they were to die for. Awesome flavor, tender texture, heady aroma ... Read on »
Novartis just called by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) A few days ago I participated in a survey about my experience so far with Gilenya. This was by invitation only and was geared toward individuals who had just started takin ... Read on »
Testing out ScribeFire extension for Chrome by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Copying my beloved blog from http://fty720.blogspot.com over to http://gilenya.blogspot.com has created the need for a tool that will simultaneously allow me to post blog ... Read on »
A Trip to the Fair - Part 2 by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) While I was sitting there with bag of ice pressed to my goose egg I started shaking uncontrollably and felt like maybe I was a little bit in shock or something. I just kept ... Read on »
A Trip to the Fair - Part 1 by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The azaleas are in bloom here in North Florida, ushering in the springtime. One of the annual events is the Putnam County Fair which we always try to attend but usually some ... Read on »
It's finally over! by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Wednesday and Thursday (the 19th and 20th of Jan.) were a blur of testing. Novartis wanted things wrapped up for the TRANSFORMS trial by January 20, 2011 and the folks at my ... Read on »
Nearing the end by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I went for my checkup on December 1st. Just the usual blood draw, EDSS  test, BP, HR, and one other thing I've never done before... I filled out an application to a speci ... Read on »
New Drug Appears To Overcome Resistance In Ovarian Cancer by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) New Drug Appears To Overcome Resistance In Ovarian Cancer This is AWESOME news! I hope that clinical trials end up confirming that Gilenya / Fingolimod / FTY720 can fig ... Read on »
Apparently it was just MS fatigue by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I've been back on the Estradiol for several days now with no issues. No fatigue like I felt those first few days where keeping my eyes open nearly required toothpicks. I ... Read on »
Update on the Estradiol experiment by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Today was inconclusive. I took a 2 hour nap, true, but I am not positive what caused the fatigue. Today was Mom's birthday and my sister came over and took us all out to ... Read on »
The Estradiol Experiment Continues by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Since I last left you, I haven't taken my newly filled Rx of Estradiol any more after suspecting it was causing me extreme fatigue. I spoke to a pharmacist who pointed ou ... Read on »
Blood Pressure Medicine and MS by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) How could this be a year old and I never saw it? http://www.medicinenet.com/script/main/art.asp?articlekey=104764 A drug commonly used to treat high blood pressur ... Read on »
Estradiol update by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Yesterday I forwent (is that a word? Okay, how about skipped?) my Estradiol in a little experiment of my own to see if it had any effect on the extreme fatigue I have been s ... Read on »
Vote Now to Help Fund Research for CCSVI and LDN by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) My friend and former neurologist, Dr. Daniel Kantor has dedicated his life to Multiple Sclerosis. He is the singular most passionate person I know who stands as an advocate ... Read on »
Estradiol and possible fatigue by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Honestly, with the many and varied symptoms one can experience due to MS it's so hard to know what might be caused by something else. My new issue, only to have reared it ... Read on »
Doxycycline and MS by Jeri B. Patient Expert 1 Comment Posted in: Blog Posts in Multiple Sclerosis (MS) I know this is old news but something I have thought about for over three years now... http://www.medicalnewstoday.com/articles/91379.php While this was hardly a maj ... Read on »
Taking a deep breath... by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Ok, so the issue of cost of Gilenya has been weighing heavily on my mind for as long as I have been having such great results. I knew it wouldn't be as cheap as say my Estra ... Read on »
HIGHLIGHTS OF PRESCRIBING INFORMATION FOR GILENYA by Jeri B. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) http://www.pharma.us.novartis.com/product/pi/pdf/gilenya.pdf Here's the highlights from the prescribing info sheet for which we all got poke prodded and inspected to pr ... Read on »