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Jennifer Jaff Patient Expert

I am the founder and Executive Director of Advocacy for Patients with Chronic Illness, Inc. We provide FREE information, advice, and advocacy services to patients nationwide in areas including health and disability insurance, Social Security disability, employment discrimination, family and... Full Bio
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The cumulative effects of tragedy's impact on my ability to be rational by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy For a short week, this one has been pretty long.  A 504 meeting with a school, 3 appeal hearings in one week, and a very critical meeting this morning.  I have to say that, ... Read on »
Oh, Boy! It's Gonna Be One Of Those Days! by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy TWO hearings today, plus a short visit from a friend and then a conference call with a potential funder.  I have no clue how I am supposed to manage all this.  So I think I' ... Read on »
Hump Day Already? by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Big appeal hearing this afternoon -- a young girl with reactive attachment disorder with multiple psychotic breaks and her insurance company doesn't think she needed inpatie ... Read on »
So Much for Long Week-ends by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Memorial Day week-end passed, and I ended up working most of yesterday, but at least I worked at home with Emily on my lap purring.  Today, our summer interns start and I ha ... Read on »
You Outta Be In Pictures! ACTION ITEM! by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Hello.  CBS News is looking for people in the Washington, DC area who would be affected if the Supreme Court strikes down the health reform law.  So if you cannot get insura ... Read on »
Finally Friday by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Almost time for this old girl to hunker down and get some rest.  TG for three day week-ends!  But first, the news Battle lines are being drawn on the Bush tax cuts , which ... Read on »
It's Only Thursday? by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy I admit, I'm beat.  In a former life, I could party until 3 am and sleep until noon the next day and move on.  Not so much any more.  I can still party until 3, but I'm up a ... Read on »
Wish I Were in Seattle by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy I had the best trip to LA, but I must admit that not being there for the Flight to Mars "home" show tonight at the Showbox in Seattle is a bit of a bummer.  If you haven't c ... Read on »
Welcome Back! by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Good morning!  Hope you all had a great few days while I was out in California.  I must say that the most fun about my job is that a bunch of our fundraising comes along wit ... Read on »
World IBD Day! by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Today is world IBD day. IBD -- inflammatory bowel diseases like Crohn's and ulcerative colitis -- affects about 1.4 million Americans. When I was first diagnosed, they had ... Read on »
Off on a Flight to Mars! by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy The day has finally arrived.  I leave here shortly before noon, headed to the airport and the trip across the country to see my friends, Mike McCready (Pearl Jam) and his wi ... Read on »
Tuesday -- Almost Outta Here! by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Today's my last full day before I head out to Los Angeles for my favorite trip of the year, Mike McCready's Flight to Mars benefits for CCFA and Advocacy for Patients.  In t ... Read on »
Monday Morning New Mommy Edition by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy I'm dedicating today's blog post to our former administrative assistant, Echo Kendall, who became a mom yesterday, on Mother's Day.  Little Urijah Tristan Johnson looks happ ... Read on »
The End by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Of the week, that is.  A very long week marked by much pain and a little fear over an infection gone wild -- life with chronic illness.  The swelling and pain are better -- ... Read on »
Connecticut Call to URGENT ACTION!!!! by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy I can't write a regular blog post today.  I'm just too upset.  For months, we have been trying to get the Connecticut General Assembly to add consumers to the Board of the H ... Read on »
Wednesday Wishes by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Life with chronic illness.  You don't ever just get a tooth pulled or an implant implanted.  I saw three dentists yesterday -- oral surgeon, regular dentist, endodontist.  T ... Read on »
Tuesday's Trials and Tribulations by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Life continues to challenge those of us with chronic illnesses.  It was too much to ask for, having a tooth extracted and an implant implanted without a major infection.  So ... Read on »
Brad Pitt, Tyler Perry and Advocacy for Patients by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Many of you already know my Brad Pitt story.  But today it took a new and incredibly amazing turn. About ten years ago, when I first found IBDSucks.com , I met a wonderfu ... Read on »
This Week's NY Times Puzzle by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy The answer is here .  Some day, I'm gonna win one of these!  J Read on »
Fabulous Friday! by Jennifer Jaff Patient Expert Posted in: Blog Posts in Healthcare Industry & Policy Two interviews left, but I think I've found not only the next Advocacy for Patients staff attorney, but perhaps the next Executive Director -- a smart young lawyer with a ch ... Read on »