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Jeff .. Patient Expert

Berwick, Pennsylvania
I was diagnosed with Polycystic Kidney Disease in 1997, started dialysis in August 2007, and had a cadaveric kidney transplant May 3, 2008. I have also had gastric bypass surgery in 2002, and was diagnosed with Charcot Marie Tooth disease, a form of Muscular Dystrophy, as a child. I'm married,... Full Bio
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Acute Renal Failure, Round 2 by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine For the second time in less than a year, I had another episode of acute renal failure.  It all started with my surgery on April 10 to have my dialysis fistula ligated ... Read on »
An Antibiotic for a Virus by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I’m sure THAT got the attention of all of the doctors, PA’s, NP’s, and RN’s who tirelessly tell people that antibiotics don’t get rid of viruses. But in my case, an antibi ... Read on »
Foot Surgery Update and Labs by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine Good news on both fronts. I recently had labs done (although it seems like I am ALWAYS having labs done).  I’m on an every-other month schedule for blood work, but sti ... Read on »
BK Virus/Transplant update October 2011 by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine It’s been a busy end of the summer, and I haven’t posted in a while, so here goes. Everything is going well-uneventful is good. My BK virus levels have been variab ... Read on »
That Pesky BK Virus by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had my monthly labs this past week, and my creatinine of 1.2 is now back to normal! The BK virus is another story.  Although still low at 84k copies in my urine, it ... Read on »
Getting Back To Status Quo by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had a transplant surgery appointment yesterday that went very well, and helped clarify some things.  I had been having burning and numbness in my hands, so the doctor wa ... Read on »
Delicate Balance by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine There is a delicate balance involved with a  kidney transplant, as proven by my recent “medical adventure”. As my readers know from last month’s post, I recently had f ... Read on »
Hospitalization May 2011 by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine What a difference 3 weeks make (since my last post).  At that point, I had just gotten home the day prior from the hospital after my foot surgery, and had been prescribed ... Read on »
Foot Surgery, April 2011 Transplant Labs by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine My kidney transplant has now temporarily taken a backseat to another chronic problem-my foot. Within the last 2 months, I’ve had 2 bouts of foot and leg cellulitis (in ... Read on »
March 2011 Transplant Update by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine The level of BK virus in my urine has gone done considerably since last month-9600 copies in February , and now just 2600 copies!   It will be 2 years in July that BK was ... Read on »
February 2011 Transplant Labs by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine The level of BK virus in my urine is down again; from 11,300 to 9600. Fortunately, my creatinine is still stable at 1.1.  All of my other labs are stable as well. I’m a li ... Read on »
January 2011 transplant update, new job by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had my quarterly appointments this week with the Transplant Surgeon and Transplant Nephrologist; everything is stable (except I’m up a few pounds since my last visit; ha ... Read on »
December 2010 BK update by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had my labs this week, and although my blood work isn’t yet available to view on MyGeisinger , I received a message that my BK urine PCR is up to 77,500 copies of BK vir ... Read on »
November 2010 BK Virus update by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had labs last week (my first BK urine in a while, as the last 2 serum tests were negative), and I have 41,200 copies in my urine.  Not bad, considering that I had over 3 ... Read on »
October 2010 BK Virus/Transplant Update by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine Busy end of summer, so I missed posting last month. I’ve had 2 straight months of negative BK in my blood, so next month, they will just  check the BK level in my urine.  ... Read on »
August 2010 Transplant Update by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I’ve stopped putting “BK Virus” in my blog post titles, as it’s apparently something that’s not going away soon.  The BK is still in my blood; my level went from 1000 vira ... Read on »
June 2010 Lab Results by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I have most of my labs back from last week, and they’re a bit perplexing.  My past 2 monthly serum BK virus levels were negative, yet last week, I had 1,000 copies of viru ... Read on »
Transplant Labs May 2010 by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had my labs 2 weeks ago, and another negative BK level in my blood. Yea! My creatinine is 1.1, and all of my other labs are stable.  My Prograf level went from 9 in ... Read on »
Transplant Anniversary, BK Treatment by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine Happy Kidney-versary to me; it will be my 2 year anniversary of my transplant on Monday! I had my quarterly Transplant follow up today with the Surgeon (Dr. Maloo) and ... Read on »
March 2010 BK Virus Update by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had my monthly labs last week, and overall they were good. My creatinine is still 1.2, my blood counts are stable (my hemoglobin will never be in the normal range d ... Read on »