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Jeff .. Patient Expert

Berwick, Pennsylvania
I was diagnosed with Polycystic Kidney Disease in 1997, started dialysis in August 2007, and had a cadaveric kidney transplant May 3, 2008. I have also had gastric bypass surgery in 2002, and was diagnosed with Charcot Marie Tooth disease, a form of Muscular Dystrophy, as a child. I'm married,... Full Bio
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Overcoming “Chronic Disease Persona” by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine In a few short weeks, I reach another milestone-my 50th birthday. I’m a firm believer that age is just a number. I’ve seen people younger than me who look like they are ol ... Read on »
Slip up by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine “Chronic disease with a positive attitude”.  While I came up with that on my own, there is a definite basis for it. In the 15 years and 8 months of MY life that my mot ... Read on »
Decisions by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine Decisions. We all make them from the time we get out of bed until the end of the day when we go to sleep. Which shirt should I wear to work? What are we going to eat for s ... Read on »
Latest BK Levels and Foot Fix by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine From a kidney standpoint, I’ve been doing well. I had 3 negative BK urine tests in a row, but the last one 2 weeks ago was positive for 5800 copies. Not bad, but another n ... Read on »
Foot Reconstruction A Success! by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I made it through my 2nd foot reconstruction with flying colors! On November 19, I had a cavovarus foot reconstruction of my right foot, to fix the the deformities caused ... Read on »
And Yet Another Surgery by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I’m headed for another medical first for me: 2 surgeries in 1 year.  The first surgery I had this year was when I had my dialysis fistula tied off in April (along with the ... Read on »
BK Virus Role In Prostate Cancer by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine A team of Swiss investigators has found a link between the polyomavirus BK and prostate cancer. It’s an interesting concept.  Viruses are well known to be linked to de ... Read on »
Lab Error by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had great news today.  Apparently, the last urine BK virus specimen that came back with >700,000 copies. was a lab error.  Or, as my transplant coordinator called it, a ... Read on »
I Dodged the Bullet by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had labs a week ago, a serum BK.  I’ve found in the past when I’ve had  5 digit BK levels in my urine, I would have it in my blood as well. However, my serum BK was ... Read on »
Decisions, decisions….. by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine More speed bumps since my surgery, although unrelated. (speed bump is my turn for a medical issue that I face, deal with, and move on, as opposed to looking at it as a pro ... Read on »
Acute Renal Failure, Round 2 by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine For the second time in less than a year, I had another episode of acute renal failure.  It all started with my surgery on April 10 to have my dialysis fistula ligated ... Read on »
An Antibiotic for a Virus by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I’m sure THAT got the attention of all of the doctors, PA’s, NP’s, and RN’s who tirelessly tell people that antibiotics don’t get rid of viruses. But in my case, an antibi ... Read on »
Foot Surgery Update and Labs by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine Good news on both fronts. I recently had labs done (although it seems like I am ALWAYS having labs done).  I’m on an every-other month schedule for blood work, but sti ... Read on »
BK Virus/Transplant update October 2011 by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine It’s been a busy end of the summer, and I haven’t posted in a while, so here goes. Everything is going well-uneventful is good. My BK virus levels have been variab ... Read on »
That Pesky BK Virus by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had my monthly labs this past week, and my creatinine of 1.2 is now back to normal! The BK virus is another story.  Although still low at 84k copies in my urine, it ... Read on »
Getting Back To Status Quo by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine I had a transplant surgery appointment yesterday that went very well, and helped clarify some things.  I had been having burning and numbness in my hands, so the doctor wa ... Read on »
Delicate Balance by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine There is a delicate balance involved with a  kidney transplant, as proven by my recent “medical adventure”. As my readers know from last month’s post, I recently had f ... Read on »
Hospitalization May 2011 by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine What a difference 3 weeks make (since my last post).  At that point, I had just gotten home the day prior from the hospital after my foot surgery, and had been prescribed ... Read on »
Foot Surgery, April 2011 Transplant Labs by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine My kidney transplant has now temporarily taken a backseat to another chronic problem-my foot. Within the last 2 months, I’ve had 2 bouts of foot and leg cellulitis (in ... Read on »
March 2011 Transplant Update by Jeff .. Patient Expert Posted in: Blog Posts in General Medicine The level of BK virus in my urine has gone done considerably since last month-9600 copies in February , and now just 2600 copies!   It will be 2 years in July that BK was ... Read on »