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Jason Adams Patient Expert

California
My blog may be benefecial to some parents; I am posting real-time as experienced daily challenges and learnings that my family and I are facing. I have benefited from reading other "bloggers" comments regarding the diagnosis my son has received, I hope another family, parent can... Full Bio
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Coughing and unemployment by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Hawke is doing many new things this week, very exciting. He started to make fake "coughs" believe it or not . . . We cough at him and he smiles and coughs back at us, he enjo ... Read on »
Testing Monday - Good report by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Been a while since I updated - - Last Monday we took Hawke to Children's Hospital we thought his soft-spot was fuller and were concerned that his shunt was not working properl ... Read on »
Hawke is doing well - amazingly ... by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Hawke is doing well - amazingly no appointments out of home last week; state funded "early-on" reps visited Hawke at home and after the assessment it was determined that Haw ... Read on »
Much thanks to Adoni (God) Much thanks for prayers! by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Thanks and all Glory to God!! Thanks to all of you for your prayers!! The additional appointments (therapy) have not started yet . . expect to hear more news this week, they d ... Read on »
Diagnosis: cerebral palsy by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Today Hawke was diagnosed with cerebralpalsy; as of tonight I know near nothing regarding CP. This day I knew was possible based upon reading I have done via medical books, si ... Read on »
Sunday night by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Getting ready to hit the hay and start our busy day tomorrow praying, anxious and concerned with what reports we may receive from rehab, CT scan and neurosurgeon. . ... Read on »
1 Step back, 4 steps forward by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities On WednesdayHawke had a thorough overview at the development center. Suggesting PT and OT twice a week (3 appointments above the regularly scheduled appointments). Delayed but ... Read on »
Good news by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Praise God!! Hawke received good report on his EEG from two weeks ago; NORMAL BRAIN ACTIVITY AND NO SIGNS OF SEIZURE!! We had a major family event within the last week that ... Read on »
Brave Hawke ** Almost 10 months! by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities He received his RSV shots today, one in each leg - handled it very well! 20lbs 9oz today and 28" he continues to do new things and there are so many improvements since sur ... Read on »
Realization by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Hawke is doing well, but is showing some developmental delays. As parents (and for family/friends) it is difficult acknowledging that Hawke is not meeting all the development ... Read on »
Quickie - Not a quickie by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Hawke slept in this morning with Mom. . .Carm is coordinating referrals and scheduling new appointments and continues to pump for Hawke. Getting ready to feed him some real fo ... Read on »
No more stitch! Thankful to be home as a family! by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Hawke had his stitch removed on Tuesday at Childrens hospital, everything went very well! Hawke already receives physical therapy weeklly; childrens hospital refeered him to ... Read on »
HOME AT LAST by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities We were discharged from DMC at about 5 ish Wed night and got home about 8:30. We are so thankful to be home! Hawke still has a touch of pneumonia and still requires some pain ... Read on »
Patience & Emma by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Hawke is doing very well but continues to " de -sat" his oxygen level within his bloodstream is to low (not at a dangerous level) to bring home. He is like a new baby today; l ... Read on »
Quick update - Good report by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Hawke is making good progress! The shunt appears large in his head but once Hawke's hair grows back you won't notice it. He was de - satting (low oxygen level in blood) yest ... Read on »
Update and pics by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Shower time! Hawke is stable and pressure is no longer ! A challenging night that he made it through. He still has recovery and mild pneumonia but is doing well!! Carmen's n ... Read on »
relieved thankful by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities Updating via cell hawke is doing well and recovering swelling is down shunt in place he is sleeping mild pneumonia Read on »
3 hours by Jason Adams Patient Expert Posted in: Blog Posts in Physical & Mental Disabilities 3 hours until surgery - ventricles are extremely large and the surgery is being pulled ahead. Heartrate was very low in the 70's and 60's, symptamatic of pressure in hte hea ... Read on »