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Janis Bell

I've had ME-CFS since 1987. Over the course of 22 years, I've tried numerous conventional and alternative therapies. I brought myself to near wellness three times (able to put in a full day and go biking and running), and each time had unusual stresses that sent me spiraling downhill into a more... Full Bio
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Live from Phoenix by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I’m writing live from the new Trivedi center in Scottsdale Arizona.  The energy here is tremendous, infused with joy and truth.  It’s an amazing experience to feel so goo ... Read on »
Back to Baseline by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome It took about two weeks to recover from the debacle with the house I tried to rent in Tucson.  In retrospect, I should not have stayed and slept on the porch.  I should h ... Read on »
Learning about contamination by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome 40 days and 40 nights in the deserts of New Mexico, Arizona, and California.   But take off the zeros and you have the number of nights I suffered in Kristi’s house in th ... Read on »
Strong and vigorous, or weak and tremulous by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Imagine feeling great when it’s cold outside.  To warm up you get in the baths or the sauna.  You sweat, you drink lots of water, you detox.  You come out feeling warm an ... Read on »
A reply to comments by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I thought I’d take up the challenge of answering Karen J.  She wrote, in comments to my most recent blog, You "felt the lethargy and fatigue of" your "WORST CFS", ... Read on »
What a Crazy Illness! by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Sunset my last night at City of Rocks, NM My stuffed nose disappeared the last day at City of Rocks.  Four days in the desert to clear up and acclima ... Read on »
VIP, a very important peptide in CFS by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome You probably don’t have enough VIP.  98% of people with CFS don’t.  The MCS crowd hasn’t yet been testing, but when you learn what this neuropeptide does, you’ll probably ... Read on »
Eye Candy by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to take a thousand pictures over the last four days as I travelled from Dallas through Cache, Oklahoma, across the Texas panhandle, and through the mountains of ... Read on »
Mold Hit by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I was really stupid.  But my lax act was also due to the impact of mold on my brain. Let me explain. It rained.  I had a plastic tarp under my tent, s ... Read on »
My first three days alone by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Day One (Saturday) I dropped David at the airport at 3 pm and soon felt a mix of emotions, turned off the radio, and tried to stay present as I drove through town look ... Read on »
Challenges and Disappointments during week one by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Our first destination in Oklahoma was Osage Hills State Park.  It turned out to be a wonderful choice.  The park was clean, our site was spacious, and the air was good.  ... Read on »
Ready. Set. Go. by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I’m on my trip!  What an adventure! It took a whole lot longer to get out of Ohio than I wanted it to because I was too attached to doing various chores I’d had ... Read on »
Back at home, fading like an old flower by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome As soon as we got into humid Arkansas, everything shifted.  At first a tiny bit.  But soon I could feel my good state of health slipping away. We camped at huge Lak ... Read on »
Something IS making a difference by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I can’t report that I’m miraculously ‘cured’ in the pristine air of a high desert wilderness area as some individuals on the Phoenix Rising forum have claimed.  B ... Read on »
Oxygen Adventures by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Lily pond at Anchorage Farm, Pine, Colorado Do you have a shortage of oxygen?  Dr. Paul Cheney has argued that everyone with CFS has symptoms simil ... Read on »
Playing Penolope, inadvertently by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome In Homer’s Odyssey, Penelope stays home waiting while her husband Odysseus travels from one adventure to another.  Because there is no word from him for two decades, ever ... Read on »
Assaulting CIRS and ME-CFS by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Whew!  After months of testing, my doctor (Alan Vinitsky) has determined that I have quite a number of infections.  While this is no surprise in ME-CFS, I'd always been one ... Read on »
Is ME/ CFS CIRS? by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Acronyms Anonymous beware.  We have yet another acronym for the disease which David S. Bell called The  Disease of A Thousand Names (1991) in one of the first books publish ... Read on »
Review of The State of ME, by Nasim Marie Jafry by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I loved Jafry's The State of ME.  The author did an amazing job of turning the horrible experience of living with chronic, disabling ME into a story that is funny, entertai ... Read on »
Review of Chronic Fatigue Syndrome: A Novel, by Caroline T. Anderson by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Chronic Fatigue Syndrome: A Novel is a self-published work written with the intention of raising awareness about CFS.  This is a good thing, and I commend the journalist wo ... Read on »