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Janis Bell

I've had ME-CFS since 1987. Over the course of 22 years, I've tried numerous conventional and alternative therapies. I brought myself to near wellness three times (able to put in a full day and go biking and running), and each time had unusual stresses that sent me spiraling downhill into a more... Full Bio
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Sweet sleep part 2 by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I wrote this a few weeks ago but held it up because I wanted to find pictures.  Well, I finally realized that I'd never get around to finding pictures, so here it is: JUST ... Read on »
Sweet Sleep by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I’ve had sleep problems for a long, long time. They got so bad when I came down with ME-CFS in ‘87 that I thought I’d go crazy. Then I had the ups and downs or many, sl ... Read on »
Housing by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome One day I talked to a Facebook friend on the phone, the next day I was replying to an ad on Craigslist, and the day after that, I had signed a lease for a stunning apa ... Read on »
Is There Common Ground in the Mold Wars? by Janis Bell Facebook 2 Comments Posted in: Blog Posts in Chronic Fatigue Syndrome I It pains me to watch “the mold wars” between various factions of the medical community treating mold illness. On one side is the valiant Dr. R ... Read on »
Vasoactive intestinal peptide (VIP): my experience by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I started VIP a week ago on the recommendation of a doctor who studied the Shoemaker protocol.  He thought I'd be a good candidate for it as it has helped many with CIRS, i ... Read on »
And the winner of the debate is.... by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Last week I started the Altwaters Technology  drops with a mixture of doubt, skepticism, and optimism.  Doubt arose from my long journey with three relapses and many ... Read on »
Skeptic debates Believer by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Believer:  I got benefits from frequency things in the past.  I tried Bach Flower Essences and other remedies but never felt a shift, yet when I studied color ... Read on »
Hope v OMG did I get swindled? by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Most of you know what it’s like when a friend has great results with something and insists you try it. I usually balk. I’ve tried a gazillion supplements and herbs an ... Read on »
Dan Neuffer's CFS Unravelled by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I highly recommend Dan Neuffer’s for anyone with ME-CFS, FMS, Gulf War Syndrome, Lyme, CIRS, and other NEIDs (neuro-endocrine-immune diseases). I also think it will h ... Read on »
Sleep surfaces for the chemically sensitive by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome What can you sleep on after you’ve exhausted conventional beds, air mattresses, and self-inflating camping pads?  This is the question I had to answer  after a diffic ... Read on »
Progress or plateau? by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome One of the most challenging features of an NEID Ineuro endocrine immune disease) is the ups and downs.  The ups excite us:  I'm finally getting results! we think as we expl ... Read on »
Laundry issues by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome    I haven’t been motivated to write. Part of the reason is because I committed to doing a paper (that 's academic jargon for an essay) for an anthology of ... Read on »
Update by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome It's been a long time since I've posted, and since several people have written to me asking where I am and how I am doing, I decided it was time for a post. I ... Read on »
Safe and mobile housing by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Background: Unable to live in my beautiful house in Ohio after getting clear (of mold and other toxins) camping for 2 weeks out West, I piled my Avalon full of camping equi ... Read on »
Bumbling around Methylation by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Are you wondering whether you should try methylation support, and if so, whose protocol to follow?  If so, this blog might help you get a handle on what to avoid and how ... Read on »
Better than a view: more Hawaii experiences by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome What could be better than a view of the ocean? I love views.  Ocean views, mountain views, panoramic views over hillsides and farms.  I grew up with a moth ... Read on »
Hawaii on Trial by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I should have trusted my first response.  Go to Hawaii?  I’d reply incredulously. There’s so much mold there! There are dry areas.  They even have cactus growi ... Read on »
CFS, Viruses, and Toxins by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome A couple of French researchers discovered exactly what I’ve been thinking about viruses and CFS.  When I clicked on the link http://www.intechopen.com/books/an-internatio ... Read on »
Obsessed with Housing by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I think I could live in this Cahuilla Indian house made of palm fronds, set alongside the shore of a clear stream of water bubbling up from the San Andreas fault where ... Read on »
Hypersensitivity and the practice of extreme avoidance by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome A friend loaned me Rea and Patel’s Reversibility of Chronic Degenerative Disease and Hypersensitivity, a thick, technical, soporific medical book which, when all the tech ... Read on »