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Janis Bell

I've had ME-CFS since 1987. Over the course of 22 years, I've tried numerous conventional and alternative therapies. I brought myself to near wellness three times (able to put in a full day and go biking and running), and each time had unusual stresses that sent me spiraling downhill into a more... Full Bio
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Overcoming discouragement by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Just because it's normal to have ups and downs on a healing journey doesn't make it easy! I had a positive response when the Doctor started me on I.V. amino acids.  It ... Read on »
Oxygen Adventures by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Lily pond at Anchorage Farm, Pine, Colorado Do you have a shortage of oxygen?  Dr. Paul Cheney has argued that everyone with CFS has symptoms simil ... Read on »
PARTICIPATE IN A CFS study with questionnaire & GET PAID by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I just participated in the following study.  It took about 10 minutes to fill out the questionnaire, a small pamphlet that came with a postage paid envelope.  I have to ... Read on »
Playing Penolope, inadvertently by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome In Homer’s Odyssey, Penelope stays home waiting while her husband Odysseus travels from one adventure to another.  Because there is no word from him for two decades, ever ... Read on »
Post consult blues and Byron Katie's The Work by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Strange. Since my consult with Rich van Konynenberg, I've been feeling pissed off. Not exactly angry but irritable, like I'm carrying a chip on my shoulder, like everythin ... Read on »
Progress or plateau? by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome One of the most challenging features of an NEID Ineuro endocrine immune disease) is the ups and downs.  The ups excite us:  I'm finally getting results! we think as we expl ... Read on »
Ramblings of a Detox Skeptic by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Okay, folks. So my current rash of symptoms could be detox. That's the optimist speaking. But my mind still keeps thinking other explanations are more likely. Sure I ... Read on »
Ready. Set. Go. by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I’m on my trip!  What an adventure! It took a whole lot longer to get out of Ohio than I wanted it to because I was too attached to doing various chores I’d had ... Read on »
Review of Chronic Fatigue Syndrome: A Novel, by Caroline T. Anderson by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Chronic Fatigue Syndrome: A Novel is a self-published work written with the intention of raising awareness about CFS.  This is a good thing, and I commend the journalist wo ... Read on »
Review of The State of ME, by Nasim Marie Jafry by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I loved Jafry's The State of ME.  The author did an amazing job of turning the horrible experience of living with chronic, disabling ME into a story that is funny, entertai ... Read on »
Ribose or comatose by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Nearly comatose with fatigue last week, an article crossed my desk entitled “D-ribose, chronic fatigue and fibromyalgia.” The author, Tori Hudson, is a noted naturopath, a ... Read on »
Safe and mobile housing by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Background: Unable to live in my beautiful house in Ohio after getting clear (of mold and other toxins) camping for 2 weeks out West, I piled my Avalon full of camping equi ... Read on »
SAM-e is not my friend by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Three days later (written in December): I haven’t slept decently for the last 3 nights. The first night I assumed travel disrupted my routine. The second night, awakeni ... Read on »
Skeptic debates Believer by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Believer:  I got benefits from frequency things in the past.  I tried Bach Flower Essences and other remedies but never felt a shift, yet when I studied color ... Read on »
Sleep surfaces for the chemically sensitive by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome What can you sleep on after you’ve exhausted conventional beds, air mattresses, and self-inflating camping pads?  This is the question I had to answer  after a diffic ... Read on »
Something IS making a difference by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I can’t report that I’m miraculously ‘cured’ in the pristine air of a high desert wilderness area as some individuals on the Phoenix Rising forum have claimed.  B ... Read on »