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Janis Bell

I've had ME-CFS since 1987. Over the course of 22 years, I've tried numerous conventional and alternative therapies. I brought myself to near wellness three times (able to put in a full day and go biking and running), and each time had unusual stresses that sent me spiraling downhill into a more... Full Bio
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Hawaii on Trial by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I should have trusted my first response.  Go to Hawaii?  I’d reply incredulously. There’s so much mold there! There are dry areas.  They even have cactus growi ... Read on »
Hope v OMG did I get swindled? by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Most of you know what it’s like when a friend has great results with something and insists you try it. I usually balk. I’ve tried a gazillion supplements and herbs an ... Read on »
Housing by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome One day I talked to a Facebook friend on the phone, the next day I was replying to an ad on Craigslist, and the day after that, I had signed a lease for a stunning apa ... Read on »
How am I doing? by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome A friend asked last week: "Forget all the technical stuff. How are you doing?" No easy answer. "Fine" for acquaintances. "Discouraged for the doctor. "Cosi co ... Read on »
How to Get Started on the Simplified Five by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome My friend Bonnie, with Lyme-induced CFS, is intriqued by the methylation protocol. But she is confused about how to get started. So I am dedicating this post to her (and t ... Read on »
Hypersensitivity and the practice of extreme avoidance by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome A friend loaned me Rea and Patel’s Reversibility of Chronic Degenerative Disease and Hypersensitivity, a thick, technical, soporific medical book which, when all the tech ... Read on »
I'm feeling FABUILOUS! by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome The Trivedi retreat ended yesterday after 5 pm, and boy did it transform my state!  My excitement is as palpable as champagne bubbles!  And indeed, I even drank champagne y ... Read on »
IMPROVEMENT! by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome The results of my second methylation panel from Vitamin Diagnostics Lab came screeching through the fax this afternoon, announcing that I am making excellent progress. ... Read on »
Intake Appointment by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome "You look healthy on the outside, but you're a mess on the inside," said my new doctor.  He had just examined me and looked at my test results. His words reverberate in ... Read on »
Internal doubts, external confirmation by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Having been sick with ME-CFS for 23 years, I've had my share of ups and downs.  I've tried a gazillion treatments (well, maybe not quite that many!) and have benefited from ... Read on »
Is ME/ CFS CIRS? by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Acronyms Anonymous beware.  We have yet another acronym for the disease which David S. Bell called The  Disease of A Thousand Names (1991) in one of the first books publish ... Read on »
Is There Common Ground in the Mold Wars? by Janis Bell Facebook 2 Comments Posted in: Blog Posts in Chronic Fatigue Syndrome I It pains me to watch “the mold wars” between various factions of the medical community treating mold illness. On one side is the valiant Dr. R ... Read on »
Laser Energetic Detox in Florida by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome It's taken me more than a week to recover from my trip to Florida and find the energy to write.  I didn't expect LED (laser energetic detox) to be such an intense experienc ... Read on »
Laundry issues by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome    I haven’t been motivated to write. Part of the reason is because I committed to doing a paper (that 's academic jargon for an essay) for an anthology of ... Read on »
Learning about contamination by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome 40 days and 40 nights in the deserts of New Mexico, Arizona, and California.   But take off the zeros and you have the number of nights I suffered in Kristi’s house in th ... Read on »