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Janis Bell

I've had ME-CFS since 1987. Over the course of 22 years, I've tried numerous conventional and alternative therapies. I brought myself to near wellness three times (able to put in a full day and go biking and running), and each time had unusual stresses that sent me spiraling downhill into a more... Full Bio
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Vasoactive intestinal peptide (VIP): my experience by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I started VIP a week ago on the recommendation of a doctor who studied the Shoemaker protocol.  He thought I'd be a good candidate for it as it has helped many with CIRS, i ... Read on »
And the winner of the debate is.... by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Last week I started the Altwaters Technology  drops with a mixture of doubt, skepticism, and optimism.  Doubt arose from my long journey with three relapses and many ... Read on »
Skeptic debates Believer by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Believer:  I got benefits from frequency things in the past.  I tried Bach Flower Essences and other remedies but never felt a shift, yet when I studied color ... Read on »
Hope v OMG did I get swindled? by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Most of you know what it’s like when a friend has great results with something and insists you try it. I usually balk. I’ve tried a gazillion supplements and herbs an ... Read on »
Dan Neuffer's CFS Unravelled by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I highly recommend Dan Neuffer’s for anyone with ME-CFS, FMS, Gulf War Syndrome, Lyme, CIRS, and other NEIDs (neuro-endocrine-immune diseases). I also think it will h ... Read on »
Sleep surfaces for the chemically sensitive by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome What can you sleep on after you’ve exhausted conventional beds, air mattresses, and self-inflating camping pads?  This is the question I had to answer  after a diffic ... Read on »
Progress or plateau? by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome One of the most challenging features of an NEID Ineuro endocrine immune disease) is the ups and downs.  The ups excite us:  I'm finally getting results! we think as we expl ... Read on »
Laundry issues by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome    I haven’t been motivated to write. Part of the reason is because I committed to doing a paper (that 's academic jargon for an essay) for an anthology of ... Read on »
Update by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome It's been a long time since I've posted, and since several people have written to me asking where I am and how I am doing, I decided it was time for a post. I ... Read on »
Safe and mobile housing by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Background: Unable to live in my beautiful house in Ohio after getting clear (of mold and other toxins) camping for 2 weeks out West, I piled my Avalon full of camping equi ... Read on »
Bumbling around Methylation by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Are you wondering whether you should try methylation support, and if so, whose protocol to follow?  If so, this blog might help you get a handle on what to avoid and how ... Read on »
Better than a view: more Hawaii experiences by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome What could be better than a view of the ocean? I love views.  Ocean views, mountain views, panoramic views over hillsides and farms.  I grew up with a moth ... Read on »
Hawaii on Trial by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I should have trusted my first response.  Go to Hawaii?  I’d reply incredulously. There’s so much mold there! There are dry areas.  They even have cactus growi ... Read on »
CFS, Viruses, and Toxins by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome A couple of French researchers discovered exactly what I’ve been thinking about viruses and CFS.  When I clicked on the link http://www.intechopen.com/books/an-internatio ... Read on »
Obsessed with Housing by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I think I could live in this Cahuilla Indian house made of palm fronds, set alongside the shore of a clear stream of water bubbling up from the San Andreas fault where ... Read on »
Hypersensitivity and the practice of extreme avoidance by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome A friend loaned me Rea and Patel’s Reversibility of Chronic Degenerative Disease and Hypersensitivity, a thick, technical, soporific medical book which, when all the tech ... Read on »
Live from Phoenix by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome I’m writing live from the new Trivedi center in Scottsdale Arizona.  The energy here is tremendous, infused with joy and truth.  It’s an amazing experience to feel so goo ... Read on »
Back to Baseline by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome It took about two weeks to recover from the debacle with the house I tried to rent in Tucson.  In retrospect, I should not have stayed and slept on the porch.  I should h ... Read on »
Learning about contamination by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome 40 days and 40 nights in the deserts of New Mexico, Arizona, and California.   But take off the zeros and you have the number of nights I suffered in Kristi’s house in th ... Read on »
Strong and vigorous, or weak and tremulous by Janis Bell Facebook Posted in: Blog Posts in Chronic Fatigue Syndrome Imagine feeling great when it’s cold outside.  To warm up you get in the baths or the sauna.  You sweat, you drink lots of water, you detox.  You come out feeling warm an ... Read on »