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Jane .. Patient Expert

Hi, I'm Jane. I was diagnosed with epilepsy when I was 12, and since then have been working with epilepsy charities to fundraise and help raise awareness for the condition. I love to write and I started a blog about my personal life about two years ago. I had never really found a blog about... Full Bio
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Photosensitive epilepsy and the BBC by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures Last week I was interviewed by the BBC about living with photosensitive epilepsy. Many people mistakenly believe that if you have epilepsy, you automatically have photosens ... Read on »
Tonic-clonic woes by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures Last Sunday I had a tonic-clonic seizure - my second this year. As my tonic-clonic seizures are fairly few and far between, when they do happen they are unexpected, trauma ... Read on »
Learning First aid by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures I have always fancied the idea of being a first aider. Probably ever since I had my first few tonic-clonic seizures, when my brothers had to work out if they should phon ... Read on »
Step away from the spoons by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures Hello again! It's been a while, again, I know, but I promise I have a good excuse. Well, I have an excuse at least. A lot has changed in my life. When I last posted, ... Read on »
Young Scot awards 2010 by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures With my incredibly sporadic posting on Just Epilepsy, I forgot to mention that a year ago I won a Young Scot award for the work I’ve done over the years to raise awareness f ... Read on »
An update at last! by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures Since my last post (which was a while ago), a lot has changed in my life. I graduated university in July with a degree in English, my boyfriend and I split up in October and ... Read on »
Titan Crane update by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures A couple of posts ago, I mentioned my boyfriend was doing an abseil from the Titan Crane for Epilepsy Scotland but then I completely forgot to write about it! I blame univer ... Read on »
Appointments by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures This week I had my annual appointment with my epilepsy specialist nurse. The appointment letter had been taped to my fridge for a year and yet I only just remembered to go. ... Read on »
Strobes by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures Most people in life have some sort of fear, many have more than one. Spiders, heights, divorce and failure are all considered reasonable and just things to fear even although ... Read on »
The Titan Crane by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures Over the years I've done various things with Epilepsy Scotland to raise awareness from small jobs like stuffing envelopes in the office to speaking to a room full of politicia ... Read on »
Chatting with a member of parliament by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures This is me doing my bit for Epilepsy Scotland with my local MSP. I spoke to him about my experiences with epilepsy and in particular my experiences as a student. He was very n ... Read on »
Remember me? by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures I am a disappointing blogger and for that I can only apologise. A while back, I was half-way through my third year at university, totally stressed out and needing a break from ... Read on »
Brothers by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures Brother Number Two once spoke to me as I was lying on the floor, post-seizure. Confused and silent, I just looked at him as he spoke gibberish, laughing hysterically at himsel ... Read on »
I'm back! by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures I cannot believe the last time I wrote a blog here was in July. Shame on me. I am refusing to give it up however, as there are people who occasionally make it here and I hope ... Read on »
Alcohol by Jane .. Patient Expert 1 Comment Posted in: Blog Posts in Epilepsy & Seizures Long time no speak but it’s been pretty quiet on the seizure front lately – not that I’m complaining. I was in Wales at the weekend for my cousins wedding. It was a ... Read on »
The Wags dinner by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures The Wags dinner was held last night. Other than having to abandon my very uncomfortable shoes half way through the night it was very successful. After meeting my fr ... Read on »
Filming for the Wags by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures Every year Epilepsy Scotland runs an event known as the ‘wags’ dinner. I’ve never been, but for years I’ve watched The Mother debate about this dress or that dress, these sh ... Read on »
An introduction by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures Hi, I’m Jane. I am not a doctor and I am definitely not an expert on epilepsy, or any other neurological condition. I suppose I am however an expert on having epile ... Read on »
Travelling by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures In the United Kingdom, the law states that someone with epilepsy cannot have a driving licence if they have had a seizure in the past year. I’m not in any way an expert on t ... Read on »
Jane beyond epilepsy by Jane .. Patient Expert Posted in: Blog Posts in Epilepsy & Seizures For people who don’t know, I have two blogs, this one, and my other one where I practice my ‘real’ writing. Since this blog is topical, there is only so often I can post on ... Read on »