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middletown, Ohio
I am a stage 4 Neuroblastoma survivor and a mother. My youngest daughter has many health problems, including Cerebral Palsy and multiple birth defects. Please join us as we navigate through this "special needs" journey.
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It's been so long since I've u ...

It's been so long since I've updated.  June was a rough month with Ava being inpatient 3 times.  We switched up her home hypoglycemia/illness...

Rocking the boat

I'm a terrible blogger.  School is out for the Summer.  Dakota is an 8th grader, Christian is a 3rd grader and Ava in Kindergarten.  Dakota got a...

Finally an update

I know I'm the worst blogger ever. I'm sorry. This blog has turned into a health blog about Ava and I really don't want that. I'm not sure...

Time flies

I try not to get too hung up on the Mitochondrial Disease diagnosis and what that means for Ava's future, but this week was hard. Our Mito...


Since my last post Ava has been admitted twice. Her special needs ped thinks it's time to take her out of preschool for a while. Ava doesn't...

Latest Activity

Hope posted dependant Jan 08 2010
Hope posted The best gift ever Dec 20 2009
Hope posted bunkered down Dec 02 2009
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