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Holli

Beaumont, Texas
Blog: http://love4austin.blogspot.com
I am mommy to one son, Austin, who was diagnosed with a catastrophic form of epilepsy known as Infantile Spasms/West Syndrome at six months old.  He was diagnosed in May 2008, and it has been an uphill battle ever since.  We struggle with numerous daily seizures and developmental... Full Bio
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Three little words by Holli Posted in: Blog Posts in Epilepsy & Seizures (I'm going to copy and paste this one to my fb because I still haven't had the patience to figure out how to link to my feed. That and I don't want to write it twice. lol) ... Read on »
In Detroit by Holli Posted in: Blog Posts in Epilepsy & Seizures We're about 10 1/2 hours into Austin's 24 (or less) hr EEG. I honestly was beginning to think I was never going to be able to sit still. We have been going practically nonst ... Read on »
I hate thinking up titles... by Holli Posted in: Blog Posts in Epilepsy & Seizures I seriously thought I was going to get on a better roll with the updates, but nothing major has been happening! Austin's condition has remained fairly consistent with few ... Read on »
Finding my way back by Holli Posted in: Blog Posts in Epilepsy & Seizures I've been trying to talk myself into posting an update for weeks now. I just get in these phases where I want to be as far away from seizure talk as possible. Reminders are ... Read on »
Yes, we're still alive by Holli Posted in: Blog Posts in Epilepsy & Seizures It's always difficult to get back into updating when I go so long between posts. There's been more going on in the past month and a half than I could have ever imagined. I c ... Read on »
Because sometimes I gotta blame someone... by Holli Posted in: Blog Posts in Epilepsy & Seizures Other than myself, of course. At least every once in a while. I admit, I have been distracted this past week. Very. For reasons I won't get into. But, because I think I dese ... Read on »
It's here by Holli Posted in: Blog Posts in Epilepsy & Seizures I can't honestly say it's been worth every penny...just yet. We've had a few issues -which I'll go into more detail later on, and it's quality has left something to be desir ... Read on »
Another joyful day at Texas Children's by Holli Posted in: Blog Posts in Epilepsy & Seizures We just can't seem to stay away from this place. Since our nearly one week visit for Austin's surgery back in January, we've been back four times. One follow up two we ... Read on »
Time for a change by Holli Posted in: Blog Posts in Epilepsy & Seizures Past time, actually. Oh, the decisions... I worried about this last year. Austin is getting BIG. And he's definitely a mover. I knew it wouldn't be long before a cri ... Read on »
As promised by Holli Posted in: Blog Posts in Epilepsy & Seizures Now for the GOOD of the surgery. I've spent so much more time emphasizing what has gone wrong and the negatives since surgery, it's time to share ... Read on »
Austin Feb '11 at OneTrueMedia.com by Holli Posted in: Blog Posts in Epilepsy & Seizures My balance is 90% improved, I walk with my head up now, I can climb on the couch SO much easier, and I'm pushing buttons on purpose! With ONE finger!!! Oh, yeah and I LAUGH ... Read on »
Information Overload by Holli Posted in: Blog Posts in Epilepsy & Seizures We had that all important appointment with our epilepsy specialist this past Friday. Unfortunately, I didn't get the news I wanted to hear. We talked past, present, and ... Read on »
Ping Pong Anyone? by Holli Posted in: Blog Posts in Epilepsy & Seizures Never in the almost three years of dealing with daily seizures have I ever been so indecisive about our situation. Sure, it's been up and down since this all started, but i ... Read on »
Mommy vs Doctor by Holli Posted in: Blog Posts in Epilepsy & Seizures That's how it feels sometimes. Like when we went behind his back to see Dr. Chugani in Detroit. We never discussed it with him. Not even once. We've been seeing him f ... Read on »
And it continues... by Holli Posted in: Blog Posts in Epilepsy & Seizures We've had a few scares since my last post -which is why I never got to the good stuff I promised. I will get to it soon. There are so many. But, first... Seizures are ... Read on »
First the not so good by Holli Posted in: Blog Posts in Epilepsy & Seizures I guess I'll just dive right into it. No sense in stalling or beating around the bush. This has been an awful week for Austin and seizures. Awful because he just had br ... Read on »
Because I'm too lazy to write... by Holli Posted in: Blog Posts in Epilepsy & Seizures Austin has definitely been keeping us on our toes...hence, my brief update. To sum this week up, he's been pretty well over all. Seizures are still much lower than the nor ... Read on »
Home at last by Holli Posted in: Blog Posts in Epilepsy & Seizures Just a very quick update so I'm not leaving everyone hanging (those of you not following on facebook)... We are home! Austin is VERY hard to read right now. Like my m ... Read on »
Post-Op Photos (Days 2-3) by Holli Posted in: Blog Posts in Epilepsy & Seizures Consider yourself warned! The photos are actually not bad at all though. They will probably tug at your heart more than ... Read on »
Post-op -Day 3 by Holli Posted in: Blog Posts in Epilepsy & Seizures I have to start by saying today started as one of the worst days of my life. Mom (aka Nana) took the night shift last night so Chad and I could go get rest at the hotel. I c ... Read on »
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