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Holli

Beaumont, Texas
I am mommy to one son, Austin, who was diagnosed with a catastrophic form of epilepsy known as Infantile Spasms/West Syndrome at six months old.  He was diagnosed in May 2008, and it has been an uphill battle ever since.  We struggle with numerous daily seizures and developmental... Full Bio
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Three little words

(I'm going to copy and paste this one to my fb because I still haven't had the patience to figure out how to link to my feed. That and I don't...

In Detroit

We're about 10 1/2 hours into Austin's 24 (or less) hr EEG. I honestly was beginning to think I was never going to be able to sit still. We have...

I hate thinking up titles...

I seriously thought I was going to get on a better roll with the updates, but nothing major has been happening! Austin's condition has remained...

Finding my way back

I've been trying to talk myself into posting an update for weeks now. I just get in these phases where I want to be as far away from seizure talk...

Yes, we're still alive

It's always difficult to get back into updating when I go so long between posts. There's been more going on in the past month and a half than I...

Latest Activity

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Holli posted seizures and all Dec 16 2009
Holli posted The Good News Nov 13 2009
Holli and danielle foltz are now friends. Aug 17 2009
Holli wrote on danielle foltz's Whiteboard. Aug 17 2009
Holli 's Whiteboard

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