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I can't do a side plank by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I've been struggling with this exercise for weeks now, and I've given up. I can do everything else (with a little effort, and not without some resulting soreness) in all of ... Read on »
A strict no baked goods policy by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I went to the Y today for a yoga class I really love. I try to get to class on time, but today, I was 10 minutes behind all day. When I finally forced my toddler, ... Read on »
Swimming by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I've signed up for a new adventure. This summer, I'll be doing a race that is a run-swim-run. It's a 1K run in the sand, a 1K open ocean swim, and a 5K on the beach boardw ... Read on »
Boston by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Off to Boston again this week to see Dr. Steinman and be tethered to the Beth Israel hospital for them to collect at 24 hour urine sample. It's an odd thing, really, to be ... Read on »
The gospel according to me by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I get a lot (okay, not a lot, but let's pretend half a dozen is a lot) of emails from people who find my blog who are newly diagnosed that ask me lots of questions. How do I ... Read on »
Done. Now what? by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure 13.1 miles done and done. 2:23:21. I can honestly say I felt great crossing that finish line. I had a big dopey grin on my face, and I was whooping like an idiot. My knees ... Read on »
Crossing the finish line by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure When I started this whole hare-brained (or is it hair-brained?) idea of running a half marathon, I asked 3 other women to do it with me. Along the way, we've picked up a few ... Read on »
Night at the ER by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I got another "wow" from yet another health professional. I LOVE that. Last night, I drove myself to the ER with excruciating abdominal pain and vomiting that had occurr ... Read on »
Everybody has an opinion by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure When I had trouble having kids, I got all kinds of advice. "You have to gain some weight. That will help." "You need herbal supplements." "You just need to relax. ... Read on »
Missing the walk by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Normally, at this time of year, I'd be timidly asking folks to donate to the PKD walk, and I'd be packing up my kids and heading down to Virginia Beach or wherever to particip ... Read on »
The whys by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I went shopping for new shoes tonight. We took the whole fam-damily, as the store was having a buy one, get one half off sale, and my husband needs new shoes too. So we wres ... Read on »
5.2 by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Nope, not the number of my creatnine, or my phosporus levels, or any other crazy amount of numbers that I deal with these days. Those are miles, baby. I know that I said ... Read on »
It is time by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure When I write that, I think of the baboon monkey in 'The Lion King', you know, the one that was voiced by Benson . I also saw that guy as the Phantom of the Opera. The Wik ... Read on »
Overthinking it by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure This post is about poop. Just so you know. I have a two year old, so poop is a major part of my life. Well, I have a dog, too, which means that even if I didn't have a tw ... Read on »
When Cyndi Lauper sings about kidneys, attention must be paid by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I don't know, maybe I'm biased, but there is just something wicked awesome about celebrities singing about giving a kidney to a man named Milton Greene, "We are the World" sty ... Read on »
A lot of pee in one week by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure It's been a kidney intense week. It started last Thursday, when I did my 24 hour urine collection for my nephrologist here, which of course lasted until Friday. I got a blood ... Read on »
I'm a dope by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I was in the garage today, looking for some stuff in the freezer, when I came across my 24 hour urine collection jug. (Man, why does that thing always end up in the garage? ) ... Read on »
An outie by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I read a book about pregnancy once where the woman said that she can tell a woman has been pregnant just by looking at her belly button. This made me think of two things: ... Read on »
I guess they can't hear the people in my head by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure In church, we have a "good news minute". That's the time where anybody who has good news can quickly shout it out and share. I almost never share any good news. I have m ... Read on »
A love story by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure It's not often that PKD makes the mainstream media news. I'm glad to see this article, posted in the Boston Globe. It's a PKD love story. Enjoy! Read on »