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To post or not to post by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Today I spent some time on the PKD Foundation's FB page. I'm so glad they have this page, because 1)it's a sign that the PKD Foundation is moving with the times (seriously, ... Read on »
Crappy Genes by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I have a twin sister. We're not identical. She was diagnosed with Type I diabetes, about 2 years ago. My older sister just found out that she is insulin resistant, whic ... Read on »
New Year, new shoes, and a new symptom by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I bought new running shoes on Monday. Because it's a new year, and because I'm predictable, of course I've made fitness goals. You know, like everybody else on the planet. ... Read on »
Kinda like a piece of meat by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I had a massage the other day (yes, it was lovely, thank you so much for asking.) I told the massage therapist that my hamstring was still bugging me (which it is, and at t ... Read on »
A pregnancy tale by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure This month, my period started a few days early. More annoying than alarming, I didn't think anything of it. Then, 3 days after it started, it stopped. Completely. Done. ... Read on »
The Reluctant Donor by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure It's a book. My dad told me about at a family dinner the other night, and he said while he was reading it, my mom said, "Don't tell Heather about this book!" Which means ... Read on »
House MD by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure PKD was mentioned TWICE this season. (Season 6, that is. I'm catching up through episodes on Itunes.) But how cool is that? The first time, the patient didn't have ... Read on »
Pain, once more with feeling by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure The group of women I used to run with has sort of fallen apart. Pregnancies, new babies, job changes (which took two of my best girls to a whole other city. Stupid jobs) a ... Read on »
Creatnine by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Up to 1.07. I think that's bad. I get confused about creatnine, mostly because I'm not ever totally sure what my level is. When this whole thing began, I thought I star ... Read on »
Donating my body to science by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I totally want to do it. This freaks my husband out. See, when I was in college, I had an anatomy class where we worked with cadavers. I thought it was the coolest th ... Read on »
More about pain by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I think I've said this before, but I'm always amazed at all the different kinds of pain you can feel, at the same time, in the same body. Amazing, really. For example, t ... Read on »
It's an illness MEME! by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure So, apparently, this past week was " Invisible Illness Awareness Week". Who knew? And apparently, there's a meme that goes with it, which is something that I guess is like ... Read on »
Trying not to get fat by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure My appt went pretty well the other day. Creatnine is up, but not by too much. If I continue to progress this slowly, I might have 20 years before a transplant. But of cou ... Read on »
And then it was summer by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I swear, either time is moving faster, or I'm taking longer to blink. Every time I turn around, it's a new month. I didn't know it was possible for seasons to go so fast. ... Read on »
Back in the saddle by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I have permission from my physical therapist to run. 1 mile. I'm going to try tomorrow. The sad thing is, I bet it will be tough. I'm about 3 weeks into PT, which means ... Read on »
Seeking for alternatives by Heather .. Patient Expert 1 Comment Posted in: Blog Posts in Kidney Failure Today I want to talk about alternative medicine. This is my opinion, obviously, so I'm not speaking for any community at large. Just me. But it's been a bee in my bonne ... Read on »
Learning even more about myself by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I had my PT eval today, and it was pretty much what I expected. The PT said that hamstring injuries can take a while to heal, and I got the feeling that she was hoping she ... Read on »
Linky Goodness by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Here is the story from The Daily Press , our local newspaper, about me and PKD. The print version included a half page picture of me lifting weights. I look lame. The pic ... Read on »
For those who are visual learners by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Here is a shot from my latest MRI scan. A girlfriend of mine calls it "The Money Shot". And it is impressive, if I do say so myself All the white parts are cysts. A ... Read on »
My friend calls it "drunk dialing the blog" by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure That's what she says, anyway, when you find yourself awake at night and sleep is far away and you have the good luck to have a blog. I guess it's the 21st century version o ... Read on »