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5.2 by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Nope, not the number of my creatnine, or my phosporus levels, or any other crazy amount of numbers that I deal with these days. Those are miles, baby. I know that I said ... Read on »
6 month check up by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Everything was great. Everything except that pesky creatnine. It's up. From .8 to .9. Now, other doctors will tell you that I'm still in the range of normal. They'd be ... Read on »
64 Pages by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I'm seeing another doctor next week to discuss some further developments in the ongoing saga of my body. She's never seen me before, so, of course, she wants my records. S ... Read on »
A boring life by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure In 2005, I was living in Northern Virginia, a mom working part time as a speech language pathologist. We had been in Virginia for about 2 years, and our lives had settled, af ... Read on »
A day in the life by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I often get emails that thank me for this blog. That makes me feel super duper great, actually, because it makes me feel like 1) people are reading (wooHOO!) and 2)there is ... Read on »
A lot of pee in one week by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure It's been a kidney intense week. It started last Thursday, when I did my 24 hour urine collection for my nephrologist here, which of course lasted until Friday. I got a blood ... Read on »
A love story by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure It's not often that PKD makes the mainstream media news. I'm glad to see this article, posted in the Boston Globe. It's a PKD love story. Enjoy! Read on »
A mother's love by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I recently discovered Julia Robert's blog (no, it's not the actress--oh, think of the money for PKD if it were!). She has 2 kids who have been diagnosed with ARPKD, and her ... Read on »
A new vocabulary by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure DH and I often say that education is really just about vocabulary. He can't read the journal articles I read because he doesn't know what an oropharynx is. I can't read hi ... Read on »
A pregnancy tale by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure This month, my period started a few days early. More annoying than alarming, I didn't think anything of it. Then, 3 days after it started, it stopped. Completely. Done. ... Read on »
A sick mom by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure DH and I were talking last night, and he said, "You've had a rough coupla years, haven't you?" That's an understatement. "Do you think J has any idea how hard thing ... Read on »
A strict no baked goods policy by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I went to the Y today for a yoga class I really love. I try to get to class on time, but today, I was 10 minutes behind all day. When I finally forced my toddler, ... Read on »
About this blog by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure We need a blog. Us. Patients with PKD. I just went to the PKD Foundation Conference, "Hope on the Hill", and there were lots of things for patients. Lots of information, ... Read on »
Adventures in hypochondria by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I've already established that I'm a hypochondriac.  The story I always tell about PKD is that for months before my diagnosis, I was convinced that I had a tumor on my liver. ... Read on »
Adventures with kale with a little TMI on the side by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I've been following Drew Canole on Facebook.  His page is called Juicing Vegetables , and it's all about how juicing can change your life. (I'd like to take this oppo ... Read on »
Aliens in my torso, but maybe nothing's wrong by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I can feel my cysts. Truly, I can, and truly, some days it just freaks me out a little. It is especially noticeable in the morning, when my stomach is empty and I am ly ... Read on »
All things dark and creepy, all creatures who eat my carrot cake with cream cheese frosting by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I did all the natural treatments-the vinegar, the eucalyptus oil, the peppermint oil, the pepper, the lemon juice. I finally paid the nice man lots of money, watched him p ... Read on »
An outie by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I read a book about pregnancy once where the woman said that she can tell a woman has been pregnant just by looking at her belly button. This made me think of two things: ... Read on »
And then it was summer by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I swear, either time is moving faster, or I'm taking longer to blink. Every time I turn around, it's a new month. I didn't know it was possible for seasons to go so fast. ... Read on »
And to think of all the money wasted on pharmeceuticals by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure This story claims that chocolate reduces pregnancy risk, specifically the risk of pre-eclampsia, by reducing blood pressure. Move over, PBJ. I'm having organic da ... Read on »