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It's twins! by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure The title of this post is what I should have said to the lady who said to me yesterday, "Oh my goodness, Heather, are you preggo?" What actually  happened was much differ ... Read on »
HALT PKD, GFR, and Stage 3 by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I got the official transcript of the HALT PKD study the other day, fresh from the presses at the New England Journal of Medicine.  I was surprised to see that Dr. Steinman w ... Read on »
Riding and balance by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I'm learning to ride a  horse.  Not just, you know, hop on, giddyap and go Bessie, but actually learning how to do tricky things like post a trot and canter.  It's all part ... Read on »
Bodies are not like houses by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Our house is old.  Not cool old, like historical mansion type old, but rather annoying, built in the 80's with cruddy construction old.  We like the layout, we LOVE the neig ... Read on »
Women by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I've been thinking a lot about feminism lately, and thinking about women in the workplace.  As I'm taking steps to re-entering the work force, I've been thinking about all o ... Read on »
Stigmas by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure As I was indulging in my previously confessed Facebook addiction, I scrolled across an article entitled something like "Coming out as Fat".  It's a provocative title, it's c ... Read on »
PKD Awareness Day by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Because I am really, really, REALLY bad at fundraising and doing the Walk for PKD, and my husband likes to make videos, BEHOLD, I give you my PKD Awareness Day Video.  It ha ... Read on »
Hernia chit-chat by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Having a disease is a great way to get educated about your body. I know that sounds weird, but it's true.  I've seen pretty much every organ of my body imaged in some way ... Read on »
The ALS Challenge and disease awareness by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I spend a lot of time on Facebook (I wish this wasn't true, but it IS true,  so I'm just going to own it. Lookit me, owning stuff.  I must be growing. Or devolving.  It's ha ... Read on »
Slip 'N Slides are a bad idea by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure We recently took an awesome vacation with my in-laws to a dude ranch in Wyoming.  I can't think of anything I would rather do, and the experience met and exceeded my expecta ... Read on »
On Looking Pregnant and Being Cool by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure Recently, I read this post over at PKD Will Not Beat Me.  I related to it so much.  People don't ask me if I'm pregnant--I'm 5'9", so I have the blessing of having a lot of ... Read on »
Mom's Night Out by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure This is not a post about PKD, but my tagline does say this blog is about motherhood (does it?  It does, right?  And something about a dog?), so I thought I'd write about the ... Read on »
Post cataract world and other random crap by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I got my cataracts removed in February. Wow, that was, well, not what I expected at all. One of the things I never knew I really counted on was my close vision.  There wa ... Read on »
More eyes by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I saw my eye doctor last week.  I am officially scheduled for cataract surgery---hoo--friggin'--ray.  It consists of large amounts of office visits, prep visits, pre visits, ... Read on »
Liver update by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I don't have gallstones.  My gallbladder is just as pretty as can be, which is nice.  My liver, however, has an 8 cm cyst on the right lobe, which I kinda knew, but didn't k ... Read on »
Liver cysts by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure My stomach hurts.  A lot.  It hurts right under my breastbone, and when I press on it, it feels tender.  But I'm not sure if it's tender because there is an infection/ulcer/ ... Read on »
Liza Lou by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure One of my favorite books as a kid was Liza Lou and the Yeller Belly Swamp. It's written by Mercer Mayer, who also wrote such classics as There's a Nightmare in My C ... Read on »
Hope, Inspiration, and Wisdom: A Treasury of Thoughts on Coping with Kidney Disease by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure This showed up on my doorstep today.  It's a book from the Renal Support Network, a treasury of essays generated from their annual essay contest.  Remember that co ... Read on »
In one so young by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I saw the eye doctor yesterday.  It was a good visit, one where we talked seriously about surgery for my cataracts.  I liked her--she was direct, efficient, asked good q ... Read on »
Kale makes you poop and other stories by Heather .. Patient Expert Posted in: Blog Posts in Kidney Failure I'm trying to revamp my other blog, mormonmommywars.com , and I'm getting into serious code/server/Yeti territory.  I have no idea what I'm doing, so mainly I'm just clickin ... Read on »