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Heather Heywood Patient Expert

St Thomas, ON, Canada
i'm a happy, single SAHM to three kids: Blithe (age 7), Bram (age 5) and Asher (age 3). i spend most of my time with Asher in clinics, hospital wards, and too often, critical care units. asher has a severe heart defect (Hypoplastic Left Heart Syndrome) which has led to 10 surgeries,... Full Bio
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because where better to celebrate Wonky Heart Day, really... by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health ... than in emerg! lol it's like he knew what day it was or something, honestly! yesterday afternoon, asher had about 6 blue spells. and by "blue" i mean literally, his e ... Read on »
Because where else would we spend our Sunday evenings?! lol by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health So, ed brought the kids home from the weekend at his place. And he said to me, "there's a bit of a bump under asher's cath site on his leg." Now, those readers familia ... Read on »
BEST PICS EVER!!!!!!! by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health thank-you so much to clint and shawn from renaissance studios for these amazing pics, and to geoff and staci (and chloe!) for hosting us for the afternoon. it was ... Read on »
blogger asher!! :) by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health fvbr7pbtgr6vflcgcpb2zz2sfhhrgfdj3zsfxchhhh6t0tb6087hthcx2jiz2uxih dxkXKMJB BIB CBN UFBUO;BVRIBU T8YGBBWXBNCV YBVFBIRBV GFVBIUGYBVUKIUEKIIIIIIIIIIIERVYERRRRRVUIVUB RB FGUYBCN ... Read on »
can you believe, we actually got to see a couple DOCTORS this weekend!! by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health so, yesterday, asher wasn't doing so well again. after some humming and hawing (did i spell that right?) yesterday, i took him in to emerg in london. they took us into Am ... Read on »
Cardio clinic update by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health i'm sitting here in bed this morning, listening to Tom Hiddleston read poetry (swoons!!), and drinking the coffee Bram brought me ("i made you a surprise pot of coffee" he s ... Read on »
CHD. a most beautiful gift. by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health yes, you read that right. CHD is the most beautiful gift. now, don't get me wrong. i invented the word "freaxious" for a reason. it's how you feel when you agree to an ... Read on »
Chest Tube is in and.....wow by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health Wendy again - Asher was heavily sedated last night and a chest tube was placed.   Heather is heartbroken because that drain on the right side drained 250ml within 5 minutes ... Read on »
christmas 2010 by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health yes, this post is late, and no, i don't have any pictures. :( i've lost my camera, which makes me very, very sad. so you're just gonna have to imagine all that i'm going to ... Read on »
click this title or the text of this post to check out a VERY interesting article by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health well, this is interesting... they've identified a gene which leads to CHD... including (potentially) HLHS. it seems that researchers at the University of California, San Die ... Read on »
crystal balls, looking back, and the unanswerable questions that break my heart by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health a friend of mine has a blog about parenting a medically fragile child. her daughter's condition is different than asher's, but our journeys as mothers have often been very s ... Read on »
cutest. kid. ever. by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health k, i just rediscovered these pics tonight, and i had to share them. sadly, though, i don't remember when they were taken. all i know is that it's in the hospital in Lo ... Read on »
Day 2 by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health so, we started Ramapril last night. this is the ACE-Inhibitor that they're starting asher on instead of Enalapril. it should help him by strengthening the heart muscle and low ... Read on »
day 2. by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health well, we slept in a bit this morning, like till 8:30, which really is sleeping in for us (sad, but true). the nurse came in to do a vitals check, and guess what she found. a f ... Read on »
days like this... i wish there was no such thing as CHD by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health when i turned on my computer this afternoon, i saw the news on facebook. little ewan, who was only two weeks old and was born with tetralogy of fallot, passed away last n ... Read on »
don't know why it's taken so long to update here... by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health maybe because it's all just so "meh"... not bad, per se... more like... um... wow. "meh" really is the best word. go ahead, say it out loud. you'll understand when you hear ... Read on »
downer alert: it's late, i'm tired, and asher is just so very skinny. :( by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health on tuesday, asher goes in to paeds for his monthly weight check, and this time, i'm not expecting a gain. in fact, i'm anticipating a loss. asher doesn't often eat any ... Read on »
dude, you are such a dude!!! by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health so, this morning, i picked up asher from his sunday school class, and he and i meandered down the hall to get blithe and bram from their class. as we're walking, he saw an o ... Read on »
enough of the bad news... here's what he's REALLY like :) by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health at bedtime tonight, i asked asher to put his boots by the door. i meant, in the basket with all the other kids' shoes, or on the shoe rack with mine. i forgot that a 2-yea ... Read on »
even *i* cannot come up with a clever caption for this pic! LOL by Heather Heywood Patient Expert Posted in: Blog Posts in Children's Health asher's dad just sent me this pic. asher likes to cuddle in his sleep, can you tell? Read on »