as you may suspect, friday’s appointment took a lot out of me and there is plenty to address from that. i went from being exhausted to sad, to confused and sad again —i needed a good weekend with good people to take my mind off things. there was just SO MUCH to process from that doctor appointment. i actually woke up crying on saturday morning. is that even possible? but i had a great saturday with people i love love love and a great dinner with my fam tonight so i am feeling strong and positive.
i’ll get down to the gritty when i have the energy. for now, i am saving mine for the week ahead. it’s two tests up at columbia presbyterian tomorrow. we are going ahead and starting the long process of the heart transplant list. i have a stress test and then an echocardiogram. should be a crazy afternoon. then, it’s a doctor’s appointment every single day of the week after that. fun fun fun!
heads up. as of saturday, my crew came over and there is an actual fundraiser that i can speak of! we are planning one for late june, date to come soon. my goal is to make it a really fun party to celebrate life yet raise awareness for scleroderma and heart disease and what i’ve gone through at the same time. i want the people i love to be there and i want to have an amazing 3 hours where everyone is smiling. i want it to be very “me” so i have become involved in the planning. i hope everyone can make it. more details as they become available but there’s some fun stuff i can’t wait to share with you all! thank you to my saturday crew. you cheered me up so much when i needed it most.
now it’s time for some mental relaxation. a funny movie on the couch with mas.
i’m sending love to all of you this week. it’s your energy that gets me through these tougher times. i’m thankful for you. each and every one.
as you may suspect, friday’s appointment took a lot out of me and there is plenty to address from that. i went from being exhausted to sad, to confused and sad again —i needed a good weekend with good people to take my mind off things. there was just SO MUCH to process from that doctor appointment. i actually woke up crying on saturday morning. is that even possible? but i had a great saturday with people i love love love and a great dinner with my fam tonight so i am feeling strong and positive.
i’ll get down to the gritty when i have the energy. for now, i am saving mine for the week ahead. it’s two tests up at columbia presbyterian tomorrow. we are going ahead and starting the long process of the heart transplant list. i have a stress test and then an echocardiogram. should be a crazy afternoon. then, it’s a doctor’s appointment every single day of the week after that. fun fun fun!
heads up. as of saturday, my crew came over and there is an actual fundraiser that i can speak of! we are planning one for late june, date to come soon. my goal is to make it a really fun party to celebrate life yet raise awareness for scleroderma and heart disease and what i’ve gone through at the same time. i want the people i love to be there and i want to have an amazing 3 hours where everyone is smiling. i want it to be very “me” so i have become involved in the planning. i hope everyone can make it. more details as they become available but there’s some fun stuff i can’t wait to share with you all! thank you to my saturday crew. you cheered me up so much when i needed it most.
now it’s time for some mental relaxation. a funny movie on the couch with mas.
i’m sending love to all of you this week. it’s your energy that gets me through these tougher times. i’m thankful for you. each and every one.
love Lauren