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On the Right Path

Posted Oct 16 2009 10:04pm

Memorial Day
My nephew, Michael, found me a new heart floating in Folsom Lake

Sometimes the path to recovery feels like hiking on the Appalachian Trail. So not to trip, you spend most of your time looking down to avoid tripping over half submerged roots and protruding rocks. Occasionally you have to stop and look up to see the pale green translucent light as the sunlight pours through the spring leaves above. Then you remember why you are on the trail in the first place.

The last month has been quite difficult. I have slowly been getter weaker, and subsequently, more despondent. My appetite has diminished and I have to force myself to eat. My labs results do not show a positive response to the Stem Cell Transplant. Everyone says that it is still to early to tell, but I can't always remain positive about the future. Essentially, I have no idea what is going on. Yes, this is from the guy who always has an explanation for everything. Not being able to write something positive left me without a desire to write; but that is disingenuous. I shouldn't be afraid to reveal all sides of this journey. In desperation I did something without getting my doctors' approval first. I started to take steroids again. Ironically the thing I had so been looking forward to stopping for so long. I will see my BMT and Oncology physicians at Stanford on Tuesday to discuss future treatments; I feel that they are going to start me on steroids anyway. However, in only 24 hours, the improvement is more than coincidental or purely placebo. The foot neuropathy that was so uncomfortable is lessened and my energy has increased. We are flying to New York on Wednesday for a reunion at Yale University and I needed to be stronger for the trip. I just couldn't wait any longer.

I keep reminding myself to be patient. All this will improve with time. The more time the better. As I incline my gaze upward, the light is always there. I am reminded that I am progressing on the right path, one slow step at a time.

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