Curious about what Amanda's NAS (Non-Auditory Stimulation) or twitching as we call it, looks like...here is a video clip. It is just under 8 minutes long (7 min. and 58 sec. to be exact.)
In it, her dad is videotaping while I am testing her on all three programs with the 6 Ling Sound Test (Ah, Oo, Ee, Mm, Ss, Sh) as well as listening for Goldy's dog tags and clapping. She wanted me to test her with the volume all the way up. She doesn't typically keep the volume this high, but from time to time she does turn it up like this.
When the volume is lower, most of the twitching is not there, but the sound is quieter except for Ss and Sh which she seems to be able to consistently hear.
For you who have cochlear implants or are involved in those who do and want details about her programing, her current mapping is as follows:
Advanced Bionics 90K Harmony
Hi Res-S w/Fidelity 120
P1 (09/12/08) T-Mic only IDR 70
P2 (10/10/08) T-Mic only IDR 80 (newer program with wider pulse width and increased IDR)
P3 (09/12/08) Mic/Aux 50/50 IDR 70
Although all electrodes are inserted into her cochlea, she currently only has 4 of the 16 electrodes active due to trying to control the twitching.
We are still awaiting an xray of her implant to see if there is anything internal that is causing this twitching and we have an appointment with her audiologist and an AB audiologist on Nov. 14th.
Amanda likes hearing whatever it is she's getting and can distinguish some words based on the high frequency sounds she is hearing. If this wretched twitching could be eliminated...