Health knowledge made personal
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Well, I thought our next update would be right after surgery (30th) but we are not that lucky. Last friday (13th) Thomas was not having a good morning. He was very lethargic and he vomitted 3x. I was going to call the nurse to see what she thought I should do...before I called I sat him down in the living room so I could go to the bathroom. I walked away and I heard a "thud". I turned around and I see Thomas laying on the ground, twitching around...it was only a second or so but it freaked me out. I start walking back to him and he stopped twitching but he laid completely still. I went and picked him up and he immediately started crying. By that time I was COMPLETELY freaked out so I called my Mom and we took Thomas to the ER. We were taken back right away because the nurse thought he had a seizure while I was talking to her. A nurse came in and did a finger prick...that was fine. I held him from the time my Mom came to pick us up until we were in the ER room. Which is highly unlike Thomas. He barely likes to lay down when he is tired let alone when there is alot of action going on. About 2hrs pass and an ER doctor walks in and starts asking me questions...talking to me like I was a 5yr old. I told him about the twitching and he said "so he was rolling around?" I told him about Thomas laying still and letting me hold him for over 1/2 hr and his response "so he is tired". He checked him tummy and than his ears...told me he had a left ear infection and that we could go. I take him for a re-check a few days later to find out there was NO ear infection. What a miracle..it healed in 2 days. Meanwhile we were giving him his meds which gave him horrible diarrhea (sorry). Today was his 1yr check up. He is an ounce away from 20lbs and is almost 31" tall. His pedi and I start talking about what happened last friday and she gets concerned. Especially when I tell her how tired he was afterwards. She asks me when his surgery is...i tell her and she is even more concerned. She said that if his surgery wasnt for awhile than she would say Ok...we will wait it out and see if it happens again...if it does than we will do an MRI. Bad thing....once Thomas receives his implant he will no longer be able to receive a MRI. Sooooo...pedi talks to a pediatric neurologist and although they think it may have been an episode of him crying so hard he held his breath they still want to go ahead with the MRI just in case...they dont want him seizing when he is in surgery next week. So we were waiting in the waiting room...pedi comes in and asks if it is OK if they do a non-sedated MRI...they will have to tightly papoose him and I have to be right next to him. I say...whatever it takes...I will do it. She comes back out and says Dr. Megerian called a "higher up" and got Thomas a sedated MRI for Wednesday. So Thomas goes in on wednesday at 4pm for his sedated MRI. He also has an app. on thursday at 1pm for an EEG. They want to fully ensure that he is OK and that they have nothing to worry about. I hate that this is happening but when I sit down and think about it I rather be on the cautious side(like the dr.'s said). Please keep Thomas in your prayers...that all goes well on Wednesday and THursday and also that if it was indeed a seizure that it caused no damage. I have to thank Dr. Megerian(surgeon) and Dr. Carruozzo(pedi) for making personal phone calls and getting Thomas in for these tests so soon. Otherwise the surgery would have to be postponed. Thank you in advance for your thoughts, prayers and concern.
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