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Random Intermittence

Posted Aug 26 2008 4:07pm
Ethan is certainly healthy and happy! That's the most important thing. Random intermittence of electrodes is another.

We're home from our visit in Cincinnati. Once again, we were reminded of how lucky we are to live only 3 hours away. One of the nurses asked where we were from and replied "Oh, you guys are close", to which I replied "No, we're 3 hours away"! She is used to meeting people from all over the U.S. and the world for that matter. Children's in Cincinnati is rated in the top 5 pediatric hospitals in the country. Another reason to feel lucky- I'll take it!

Ethan was sedated for his CT scan. He has undergone anesthesia 3 times but this was the first time I watched. I had no idea how hard that was going to be, silly me thought it'd be no big deal. Wrong! It made me teary-eyed and frightened. Note to self: never watch that process again.

His scan looked normal. The implant is exactly where it should be and there are no tissue changes around the implant. That's great news! I was totally relieved. My paranoia took over during the scan and I began to wonder if the reason things aren't firing correctly is because there is something new and unusual in the region of the implant. Thank goodness that's not the case.

The audiologist determined that some of the electrodes that had dropped earlier were back in action and one new electrode was now shorting out. The intermittent nature of the problem has everyone confused. The surgeon said that with this implant it is happening in less than 1% of the cases. Ethan has been a statistic since the moment he took his first breath, so we're not really surprised to hear that news.

We don't have many options. The most important thing is that he is comfortable and able to hear and until either of those goals is not met we will just wait and see. If he were to be re-implanted, then he would go without sound for about 3 weeks. Not ideal, but luckily he has and enjoys sign language, so we'd hopefully not see him feeling too much frustration.

We're still tabling the bilateral until we all feel more comfortable about Ethan's balance and motor coordination. Basically, another implant could either really help or really diminish his balance, which is extremely tentative anyway. It's a scary risk to take, so for now we'll just say no thanks. Ideally he will gain better motor control this year and then we'll all feel better about making that decision down the road.

There is more to say, but for now I'm going to leave it at that and go have a snack with E-boy.
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