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It's all good.

Posted Nov 02 2008 5:38am
Firefighters just want to have fun!

Ethan went trick or treating at school on Friday. See how big this school is? He got candy from every single classroom! 


Ethan during a speech therapy session. 

I love October, but I'm really glad that it's over this year. Rich was out of town (working) for all but 2 days last month. Ethan and I have really missed him.  We took a trip to Virginia and visited my parents, had several different appointments with the team, and started weekly PT with bi-monthly OT about to begin next week. Ethan also participated in a research project at Children's that examines language development in young deaf children who have developmental disabilities and cochlear implants. 

We successfully closed on our house in Athens and now have money in the bank and a big decision to make about our next move. It's the first time we've been able to relax and take a deep breath since moving here in July and it feels GOOD. I don't see us jumping into a new house anytime soon, unless of course the ideal place presents itself with the ideal price tag. We're actually really happy in our little apartment, especially now that we have Rich here for an extended stay. 

Ethan continues to make our hearts sing with his vibrant and tenacious little personality. He has been working so hard on speech lately and it's beginning to look like he may someday be able to talk. I have always been very hesitant to make any assumptions regarding what he will or will not be able to do, especially in the speech department. That doesn't mean that I don't have high expectations for Ethan's future, it just means that I'm guarded about the details of how he'll get there. It's a form of self-preservation that is necessary if I'm to keep myself from feeling sad or depressed. 

There's nothing to feel sad about these days with regards to Ethan's progress. We're hearing his sweet little voice all the time now. He has mastered the variety of vowel sounds that our language produces and he's also quite good at the beat of speech, never missing a syllable. He's picked up the ability to enunciate a handful of consonants now so his speech is sounding more and more intelligible each day. His signing is taking off as well. Yesterday he signed his first phrase, "My name is Ethan". We were over the moon! 

The sight reading is also continuing to amaze our family, his therapists, and even the researchers who worked with him last week. I'm going to have to compile a word list that he reads before our next IEP meeting, but I'd say that it's up near 30 words at this point. He's one observant little dude. He's starting to sign and say "smart"; apparently his self-esteem is on the rise along with everything else! 

We continue to move along on the gluten-casein free diet. It's not as much work as I had imagined many weeks ago. He can still eat meat, fruits, and veggies. The carbs are where you have to be really vigilant. He has never tolerated dairy in any form, so we didn't have to give those things up, which for many starting this diet is the toughest part. I've been watching the meats we buy to make sure they have no additives such as nitrites or nitrates. We're generally going with products from Whole Foods or all natural lunch meat from Boars Head. I've restocked my pantry with tons of flours that I never knew existed and have found numerous delicious baking recipes online. So it's not as daunting as it seemed and I'm convinced that it's really helping our boy. He is giving more eye contact and engaging in social interactions and his speech is obviously exploding for the first time in his life. The diet combined with the program at his school have formed the perfect recipe for his success. 

And there's plenty more of that on the horizon....
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