Auditory brainstem implants is finally going to become a reality for me, I’m on the urgent list for another MRI. The ABI surgeon is currently being registered under a neurosurgeon for the procedure later in the month. I don’t have NFII but have had meningitis and 3 failed CI’s within 6 months post implantation, I would be interested to know if there is anyone that is also in the NT (Non-Tumour) group who wouldn’t mind sharing their experience, the journey, then the ABI and a whole new and difficult beginning all over again. How successful is it for them etc and if they wanted to share about the surgery and activation, how many days re-admission to hospital did it require, did they require a further aesthetic pre-activation, such as the children have? CJ
Please post or link to ABI users if they can advise…. thank you.
CJ, you could check out the following;
Facegroup group – ABI Technology