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Peach & Nectarine Ice Cream and The Boys' Story (or...why we do what we do)

Posted Feb 23 2010 12:20pm

Peaches & Nectarine Ice Cream (serves 4)

- 1 cup full-fat coconut milk, chilled
- 1/2 pound frozen peaches (skins on..makes pretty flecks in the ice cream and adds nutritional value)
- 1/2 pound frozen nectarines (you can use all peaches if you can't find nectarines this time of year)
- 1/4 cup agave nectar
- 1/2 teaspoon pure vanilla extract

Blend all ingredients together in high speed blender for 30 seconds.

On to the second half of our post. You can stop reading now if you are only here for the food. ;-)

I promised you all a while back that I'd share Wubba's story. He and Izzy agreed that I could and SHOULD share their stories with you and the pictures you see below. They want other kiddos who are going through the same or similar things to know that they are not alone and that there is no reason to be ashamed of what is happening to their bodies. (We're so proud of those boys. Love that they care about helping others!) 

Wubba has Ehlers-Danlos Syndrome (EDS). EDS is the name given to a group of connective tissue disorders. (Izzy and our two younger girls are also showing some milder signs of the disorder, such as loose, painful joints and fragile skin. Our oldest daughter lost a baby last spring which may be a result of this disorder -though doctors are uncertain.) For the boys, all of this resulted in some more major physical defects. 


Wubba suffered from pectus excavatum (sunken chest as you can see here), which resulted in his heart being pushed into one lung. He was unable to breathe properly, was in pain, couldn't run and play with the other kids, was horribly winded after climbing stairs (we lived in a 3rd floor walk-up at the time) and required surgical intervention. You can look up the surgery, but I'll warn you ahead of time the pictures are NOT pretty. Wubba's pediatric surgeon performed the Nuss Procedure, during which a metal bar was placed inside his ribs to move them into their proper position. He had the bar for 3 years and it was then surgically removed. Today his chest is  "normal" looking. He breathes well and does not suffer any ill effects. 

(Side note: Wubba was severely asthmatic as a toddler and young child. He also suffered migraines regularly and vomited almost daily until he was 16.  He'd been to all types of doctors, including allergists, who could not explain what the problem was - though one doctor did realize Wub could not tolerate dairy -omitting dairy improved his breathing. When we finally removed gluten from his diet the vomiting stopped completely.) 

If anyone you know is suffering from pectus excavatum, Wubba says that he would recommend the surgery. Even though it was extremely painful, he believes it was totally worth it because he feels SO much better.

Izzy's "deformity" (horrible word really) is just the opposite of his brother's. 

Many people suffer from these very same "deformities" and "defects". That does not mean they are defective people or that they cannot lead normal, productive lives. Too often kiddos facing these challenges want to "hide" because they are embarrassed about the way they look. Sometimes they have trouble keeping up with their peers. Self-esteem can become a very big issue. The last thing these kids need is a diet deficient in nutrients.
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