Jane Sarasohn-Kahn recently authored an interesting post on her Health Populi blog about the emergence of the engaged patient. I encourage you to check out Jane’s post at http://tinyurl.com/2endtfh . For those of you not familiar with Jane, she is a health economist and management consultant that serves clients “at the intersection of health and technology.” In her post, she tells the story of several hundred people who gathered in a San Francisco hotel on October 6, 2010 to discuss the networked/engaged patient. The networked patient has a desire and curiosity to understand his or her situation and is truly engaged in the health conversation. They have a need (and a right) to understand and to be heard.
The meeting was a collaboration of the Health 2.0 Conference and Gilles Frydman who established ACOR, the Association of Cancer Online Resources, which helps health citizens connect to clinical trials, researchers, and information as well as each other. Nine individuals, patients and experts, shared their personal histories and experiences with specific communities.