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Coggon, Iowa
I was DX with PBC , primary biliary cirrhosis in 2006 stage 2. fatigue is the first symtoms.chronic pain, back, feet, liver,shoulder blades. Fibromyalgia in liver and back.Panic disorder,don't sleep at night.Put on 55 lbs. I take 3 anitdepresants,do not work very well but it is what they give me 1mgx3 loraxapam .5mg loratab x4 10mg zolpidem bed time along with 15mg remeron .I take urso 500 for my liver x2.wonder if other PBCers are here? there must be a conection to CFS,all the symtoms.... Full Bio
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memorie lost vs dementia,due to medications.

I wonder if because I am on so many different meds it may be one of the reasons my memory is fading away.? I have primary biliary cirrhosis{ PBC...

well points

i am brand new here and have no clue to what well points mean. thanks for the help jeannie

Are there any PBCers out there?

I find it very interesting that the symtoms of CFS and PBC have so much in common and now I wonder if there is a link?

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babashirl wrote on hayjeannie's Whiteboard. Sep 22 2010
panther wrote on hayjeannie's Whiteboard. Aug 16 2009

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Avoid salty foods Last update: 25 Jan 2009 » View progress
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Sep 22 2010 by babashirl

Hi hayjeannie,

I was DX with PBC, stage 2, April 2009.  I am on Urso 500 X3, along with many vitamins and Calcium (which has given me kidney stones).  The fatigue is not much better than it was even before I was diagnosed.  Have another appointment next week...hope I can get more answers!

Aug 16 2009 by panther
There are two many parallels (Lupus, MS, learning difficulties etc) and strong scientific indicators to rule out CFS and/or ME for that matter,as a non-autoimmune disease dysfunction, especially at such a relatively early stage of research in to ME.

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