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ROHNIN --- getting her move on!!! by Haveyroo Posted in: Blog Posts in Cancer Well....we can officially say that at 10 months Rohnin took her first solo steps. She just stood up and did it....we were not really ready but it's a good thing I always ha ... Read on »

Thanks Gma and Gpa! by Haveyroo Posted in: Blog Posts in Cancer Thank you Grandma and Grandpa B-Honey!!!! We love the package....the nightlight is already in the bedroom!!! Our favorite monkey is the Sock Monkey!!!! PERFECT!! B ... Read on »

ROHHAD review by Haveyroo Posted in: Blog Posts in Cancer We met with Haven's doctor today in St. G. He's a very nice doctor and listened and knew some about Haven already which is GREAT!!! I also took all of her files in and gav ... Read on »

Rohnin - growing fast by Haveyroo Posted in: Blog Posts in Cancer Miss Rohnin is growing fast!!!! She is now almost 11 months - I can't believe her birthday is next month!!! Took her to the doctor today and she is 97% in height at 30 i ... Read on »

Finding Oncology, Pulmonary, and Endocrine!!! by Haveyroo Posted in: Blog Posts in Cancer Tomorrow we will be meeting one of Haven's doctors and having a full review of everything "Haven". I have copies of all of her latest work and labs for this doctor. We wi ... Read on »

Haven - Diagnosed Neuroblastoma Cancer and ROHHAD Syndrome by Haveyroo Posted in: Blog Posts in Cancer Here is a video I worked on today....I'm looking for a better program but am trying out a few. A photo slideshow by Smilebox Read on »

ROHHAD FIGHT, INC by Haveyroo Posted in: Blog Posts in Cancer In 2007 when Haven was first diagnosed and we first learned of her Cancer and ROHHAD Syndrome we had no where to turn. Our doctors told us about a boy in Chicago that one d ... Read on »

Battle of the Backyard! by Haveyroo Posted in: Blog Posts in Cancer Holy weeds Batman! Our house from the fence at the very back of our lot and a lot of weeds to get through! So one of the things we loved most about ... Read on »

ROHHAD -- OUR SON JUST CAN’T HELP BEING OBESE by Haveyroo Posted in: Blog Posts in Cancer Here is another amazing article about a boy with ROHHAD Syndrome in the UK From newspaper: THE PARENTS of a five-year-old boy with one of the world’s rarest conditions h ... Read on »

WHOA!!!! 2005 here we come! by Haveyroo Posted in: Blog Posts in Cancer Click here to view these pictures larger So I was digging through my Shutterfly account and I guess I made this "site" in 2005. WHOA! Haven wasn't showing signs ... Read on »

Feedjit by Haveyroo Posted in: Blog Posts in Cancer I love Feedjit ---- not because I'm spying on you...well maybe. But it's a great tool to find out where Haven's site is being viewed and how they even came upon it. I am a ... Read on »

Most Amazing Mom by Haveyroo Posted in: Blog Posts in Cancer Visit msnbc.com for breaking news, world news, and news about the economy This woman is such an amazing mom. I get so tired of reading the worst stories about pare ... Read on »

ROHHAD SYNDROME by Haveyroo Posted in: Blog Posts in Cancer Well it's time for me to get back to the life I try to imagine we don't live.....a life of childhood cancer and ROHHAD Syndrome. After a few months of living here I believe ... Read on »

Who Would Have Thought...... by Haveyroo Posted in: Blog Posts in Cancer So one recent day I was standing in the kitchen (after my mother-n-law had gone back to Virginia) and my husband comes up to me and says, "could you be?"......trying to not ... Read on »

G.A.T.E. PROGRAM by Haveyroo Posted in: Blog Posts in Cancer So we are very excited. We received a letter from Haven's school to have her test for the GATE program. We've had many ask us what that is. It stands for "Gifted and Tale ... Read on »

Haven Wins!!!!! by Haveyroo Posted in: Blog Posts in Cancer On January 20th Haven had an arts award show...she had worked hard on her project but didn't know she was going to win. I received a phone call from the school letting ... Read on »

Grandma visits from Virginia! by Haveyroo Posted in: Blog Posts in Cancer Planes, trains, and automobiles...she makes it after a 24 hour delay due to bad weather on the East coast! Group photo....even Deez had to join in Shhhh...quiet ... Read on »

Haven's 8th Birthday by Haveyroo Posted in: Blog Posts in Cancer Haven's 8th birthday....her biggest party yet! Grandma and Grandpa Utah brought some gifts over a few days before (on her actual date) and then on Saturday showed up wi ... Read on »

My January babies....finally 2012! by Haveyroo Posted in: Blog Posts in Cancer Collection of photos from January 2012! Oh Rohnin....... If she can get the Xbox or PS3 controller she is super excited....she will even hide to get ... Read on »

Our Girls - December 2011 by Haveyroo Posted in: Blog Posts in Cancer These are random pics from December 2011 HAVEN Grinding her own wheat Baking an apple oatmeal dessert Hanging out Baking Christmas cookies ... Read on »

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