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Fun time at the mall by Haveyroo Posted in: Blog Posts in Cancer Got the kids to sit with Santa and tell him what they want!  Weston was more worried about what the elves were doing. They love going and climbing in the play area ... Read on »
Christmas List making by Haveyroo Posted in: Blog Posts in Cancer We took the babies out to see what they like at the stores….plus it wears them out to spend 2 hours in Toys R Us!  We always try to get them stuff that is slightly over the ... Read on »
Immunology update by Haveyroo Posted in: Blog Posts in Cancer  Just a vital check…heart rate was a bit high but everything else is good to go!  Accessing the port - we had to do this twice because her port clotted up half way th ... Read on »
Working in Bangladesh by Haveyroo Posted in: Blog Posts in Cancer The past week I have been working in Bangladesh….new experiences in my travels. Modes of transportation to the factory include police escort drives through the city, boats ... Read on »
Our ROHHAD friends by Haveyroo Posted in: Blog Posts in Cancer Mason - who also has ROHHAD - has been Haven's friend since 2008.  He was admitted to the hospital about a week ago with Pneumonia.  We want to thank everyone for their ... Read on »
Our Friend Stevie ---- Received Her ROHHAD Angel Wings by Haveyroo Posted in: Blog Posts in Cancer We are deeply saddened by the passing of Stevie.  We got to hang out with Stevie over the summer a few times and visited her at her house.  She is a beautiful baby who ha ... Read on »
November travels --- 27 hours of flying by Haveyroo Posted in: Blog Posts in Cancer I love traveling but I miss my family!  It gets pretty crazy when traveling this much.  Good thing we have FaceTime so I can see those beautiful faces! This trip started wi ... Read on »
Immunology Visit by Haveyroo Posted in: Blog Posts in Cancer This was the first time we have EVER seen an Immunologist for Haven. I wasn't sure what this meeting was going to be about or how helpful it would be but I have been desper ... Read on »
New Hospital for Labs by Haveyroo Posted in: Blog Posts in Cancer After a massive confusion at Haven's "close" hospital to get her lab work and port flushes done we were moved to another hospital.  I found out it was all miscommunication b ... Read on »
Pulmonary Doctor Visit by Haveyroo Posted in: Blog Posts in Cancer After my trips I took Haven in to see Pulmonary.  We reviewed all of her sleep issues - seems to be the biggest issues she has right now.  She has been sleep walking and eve ... Read on »
Shanghai China trip October 2013 by Haveyroo Posted in: Blog Posts in Cancer I've seen the buildings in Shanghai in TV many times…but to see them in real life is amazing. Everything is so different from the next building. This tower amaz ... Read on »
Hong Kong October 2013 Trip by Haveyroo Posted in: Blog Posts in Cancer One of my most favorite cities in the world.  Hong Kong. Here is a few pics from my latest journey this past October. Driving in to the city - I'm still amazed at the ... Read on »
Halloween 2013 by Haveyroo Posted in: Blog Posts in Cancer Grandma flew out to visit us for Halloween.  This is their ghost tree they worked on all day.  As you can see - Weston wanted to help out  He loved the ghosts so mu ... Read on »
Growth Hormone Update by Haveyroo Posted in: Blog Posts in Cancer I have been working crazy so I haven't updated her site in a long time. Haven was approved for growth hormone treatments due to not having any growth hormone at all.  She b ... Read on »
Endocrine Results by Haveyroo Posted in: Blog Posts in Cancer On August 30th Haven had a Glucagon/Arginine Growth Hormone Test. Which is to stimulate the Pituitary Gland to release Growth Hormone. Our insurance says Haven had to ... Read on »
MY LITTLE SMARTY PANTS by Haveyroo Posted in: Blog Posts in Cancer Miss Haven is homeschooled and has been for the past 1 1/2 years.  I am very thankful to my mother in law.  Grandma Cook (Beverly) has been AMAZING for miss Haven.  Whil ... Read on »
Endocrine Growth Hormone Testing by Haveyroo Posted in: Blog Posts in Cancer  Well we have been waiting a very very long time to do this test....I'd say about two years now! We finally met with our newest Endocrine doctor and had all of our lab w ... Read on »
Labor Day Visit by Haveyroo Posted in: Blog Posts in Cancer  Grandma and Grandpa were finally able to come visit us.......  we were so excited!   Grandma had to have open heart surgery last May and hasn't been able to travel since ... Read on »
August is a month of doctors by Haveyroo Posted in: Blog Posts in Cancer Well August is really a month of appointments for Haven.  Since our move we have been gathering all of her doctors and getting everything in order.  So now everything is fin ... Read on »
Reagann, ROHHAD, and Victoria Justice by Haveyroo Posted in: Blog Posts in Cancer Our friend Reagann is doing remarkably well.  Last Friday she was able to go to a Victoria Justice concert and got back stage passes to meet her.  She was first in line. ... Read on »