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1 Year Anniversary by Haveyroo Posted in: Blog Posts in Cancer The last 365 days have been the most insane in our life. Haven has had many ups and downs and spent half her year in isolation. We are happy to say a year late ... Read on »
18 Years/no diagnosis - until Haven's Mystery Diagnosis aired by Haveyroo Posted in: Blog Posts in Cancer A few days after Haven's episode aired I started receiving emails from people saying the watched the show and were happy to learn about Haven. One email hit me with a myste ... Read on »
1st Week of School.....and Nicodemus Annabelle by Haveyroo Posted in: Blog Posts in Cancer Haven has been doing excellent with her school. She has always loved to learn and would rather be doing workbooks than playing with toys. Although she does teach ... Read on »
2 Weeks Since Surgery by Haveyroo Posted in: Blog Posts in Cancer Well it's been two weeks since I had surgery on a large incarcerated umbilical hernia and a smaller hernia above that.  I have now met with the OB in regards to the baby and ... Read on »
3 weeks and still have virus by Haveyroo Posted in: Blog Posts in Cancer It's been 3 weeks since finding the virus and Haven still has it. She has to have 3 weeks consistent negative testing....so again we will start the 3 weeks over again. Howev ... Read on »
5.8 Virginia Earthquake by Haveyroo Posted in: Blog Posts in Cancer Well....we had some earthquakes last year but nothing like this one - East Coast Earthquake .  Having many years of CA experience I knew exactly what it was and what ... Read on »
5.8 Virginia Earthquake by Haveyroo Posted in: Blog Posts in Cancer Well....we had some earthquakes last year but nothing like this one - East Coast Earthquake .  Having many years of CA experience I knew exactly what it was and wh ... Read on »
6 Week Oncology Visit by Haveyroo Posted in: Blog Posts in Cancer Miss Haven had her 6 week visit to Oncology today. She did as awesome as she always has. So far Miss Haven is holding steady. It's been 15 months since our last huge ... Read on »
A bit more training and walkthrough of the BMT housing by Haveyroo Posted in: Blog Posts in Cancer Well about 13 days in to our Hi CY treatment I sat down with the Social Worker (as stated below) and reviewed everything we're about to do and everything we're about to need. ... Read on »
A day at the ER by Haveyroo Posted in: Blog Posts in Cancer We had a bit of a scare yesterday when I received a phone call from Haven's dad that she had complained of chest pains two different times at school. She didn't w ... Read on »
A few concerns by Haveyroo Posted in: Blog Posts in Cancer Well Miss Haven is pretty well.....we've been monitoring her blood pressure a lot lately as she has started her sweating issues again. This has been slowly getting worse each ... Read on »
A few updates by Haveyroo Posted in: Blog Posts in Cancer Finally got some appointments finalized for Haven. January 13th she will go in to Pulmonary and be fitted for a cpap machine. I am still very leary about this and not s ... Read on »
A few updates- School and Mystery Diagnosis by Haveyroo Posted in: Blog Posts in Cancer A few updates to note A few months ago I was contacted by the Discovery Health Channel to do an episode of Mystery Diagnosis regarding Haven's diseases. Of course we were ... Read on »
Adieu by Haveyroo Posted in: Blog Posts in Cancer Well as 18 years has come and passed I realize that there isn't a soul in the world that needs to know where we are or what we are doing unless we decide to divulge that inf ... Read on »
AFLAC - Friends of a Feather - Fighting Pediatric Cancer by Haveyroo Posted in: Blog Posts in Cancer  AFLAC FRIENDS OF A FEATHER  Friends of a Feather is the umbrella program under which Aflac conducts our Pediatric Cancer philanthropic initiatives: ... Read on »
Alaska Beauty Queen helping in Childhood Cancer Research by Haveyroo Posted in: Blog Posts in Cancer Honestly you hear A LOT about people doing stuff for cancer research.  Breast Cancer ribbons are on just about EVERYTHING you can imagine.  It's almost used so much that no ... Read on »
Allergic to what???? by Haveyroo Posted in: Blog Posts in Cancer At age 1 Haven had some zucchini bread that my friend made - I didn't know it had hazelnuts in it. We found out about 10 minutes later when Haven developed hives and bliste ... Read on »
Amazing.... by Haveyroo Posted in: Blog Posts in Cancer Yes I'm still working on her book and going through photos. Amazing what ROHHAD took from her in a matter of months! January 2006 with her sister Kendall Eas ... Read on »
Another Angel Welcomed by our ROHHAD Children by Haveyroo Posted in: Blog Posts in Cancer In January I told the world about Heather, who after 18 years of searching, was finally diagnosed with ROHHAD after seeing Haven's special on Mystery Diagnosis. On Friday ... Read on »
Another day by Haveyroo Posted in: Blog Posts in Cancer Miss Haven playing PS2 today. She has probably slept about 6 hours in the past 2 1/2 days. This medication is keeping her wired but her spirits are up. Kris has been staying ... Read on »