Rohnin turns 1
by
Haveyroo
Posted in: Blog Posts in Cancer
Whew...can you believe it!? Already a year! It was my birthday last year that we were speeding down the 95 to get to the hospital only to be sent home for another 12 days. ...
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Crazy couple of weeks
by
Haveyroo
Posted in: Blog Posts in Cancer
Well I've been extremely tired...since surgery (like 2 hours after surgery) I developed a crazy cough deep in my lungs. Both doctors assured me it was from the breathing tu ...
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ROHHAD in Scotland
by
Haveyroo
Posted in: Blog Posts in Cancer
This is an article written about one of our ROHHAD friends. She lives in Scotland. I wanted to share because there are so few of us and we need support and spreading aware ...
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School blues
by
Haveyroo
Posted in: Blog Posts in Cancer
Haven had her school pictures taken. She is just getting so grown up. I can't believe she's 8 years old. It's amazing and crazy at the same time. She loves these hair ...
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2 Weeks Since Surgery
by
Haveyroo
Posted in: Blog Posts in Cancer
Well it's been two weeks since I had surgery on a large incarcerated umbilical hernia and a smaller hernia above that. I have now met with the OB in regards to the baby and ...
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Happy Easter
by
Haveyroo
Posted in: Blog Posts in Cancer
We hope everyone had a great Easter weekend......we stayed home all day Sunday and just relaxed with the girls.
Haven worked on another round of coloring eggs on Saturda ...
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Reluctantly turning 37
by
Haveyroo
Posted in: Blog Posts in Cancer
I have decided not to acknowledge that I'm 37.......although I did enjoy the party tonight. It was a nice and relaxing evening.
I special ordered homemade pizza from g ...
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Photos of the Week
by
Haveyroo
Posted in: Blog Posts in Cancer
HUGE THANK YOU TO GRANDMA AND GRANDPA FOR WATCHING OUR GIRLS ALL WEEK! I wouldn't have made it through the critical recovery period....1 week down and 5 to go before I'm of ...
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IVIG received - much needed
by
Haveyroo
Posted in: Blog Posts in Cancer
On Tuesday we headed out to our other new hospital - Huntsman Cancer Institute in St. George. This is where Haven will get her port flushed every 4 weeks and then every ...
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Donate to Haven
by
Haveyroo
Posted in: Blog Posts in Cancer
We are very excited that people still want to donate to our baby girl and I have been asked about it a few times. But over the past few months (since January 2012) I have b ...
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Wonderful weekend
by
Haveyroo
Posted in: Blog Posts in Cancer
On Friday I went to the doctor for my 27 week check up and got to drink some yummy sugar water. This has never bothered me in all my pregnancies. I know a lot of wom ...
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ROHHAD
by
Haveyroo
Posted in: Blog Posts in Cancer
I have updated the page link on this blog titled ROHHAD. You can click on it to read about the symptoms of ROHHAD and other places you can learn about ROHHAD.
Or click H ...
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Primary in SLC
by
Haveyroo
Posted in: Blog Posts in Cancer
Tomorrow we head to SLC to visit Haven's doctor at Primary Children's in SLC. We're expecting a 5 hour drive up there , 3 - 4 hours for the appointment is what I have been ...
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ROHHAD and our battle!
by
Haveyroo
Posted in: Blog Posts in Cancer
Well we are introducing lots of new doctors to ROHHAD lately. We do seriously hope that by 2013 Haven's ROHHAD treatments will end and she will just be monitored. It's bee ...
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Thank You To Our Neighbor!!!!
by
Haveyroo
Posted in: Blog Posts in Cancer
We can't thank you enough for the help on our jungle in the back - what is now a beautiful back yard....we just keep staring at it!
Check out the before and after shot:
...
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Eye Candy
by
Haveyroo
Posted in: Blog Posts in Cancer
I've been out doing eye candy shopping all the time....yesterday I found a new place of beautiful homes. I just look at the homes here and I am in love. I am a desert home ...
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