Yes I'm still working on her book and going through photos. Amazing what ROHHAD took from her in a matter of months! January 2006 with her sister...

I've been having a few issues lately - feeling like we've missed a few years of our baby girl's life. She's been stuck in hospitals for more than...

Charlize Joliat - a beautiful 5 year old girl - has joined the angels in the heavens. She passed away from complications with ROHHAD on November...

Miss Haven had a full day of IVIG today. I heard she did excellent with her port again. Since she started feeling pain she has been more nervous...

Well - I had surgery on Monday morning so I've been pretty loaded up on drugs the past few days and not really able to stay awake long enough to...