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I spoke with pre-registration for Haven's surgery today.  We are ready to go!  First I have to say I don't remember paying $100 for every surgery...

Haven's Timeline

Below is a short story about Haven's life after being diagnosed with cancer and a rare syndrome called ROHHAD. When I was 2 I was a normal...

Up coming surgery

Haven's surgery is coming up on Monday.  We don't find out what time until Friday.  I'm hoping it's mid morning to give us time to get the babies...

The New Mask…...

Well we've tried the new mask for about a week now.  So far I'm not impressed and worry more than I did with the full face.  But I want to give it...

Sleep Study Results

Finally got the results from our sleep study and have to say it was what I was expecting. Her doctors here are able to contact her doctors at...

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Haveyroo posted Nap Time Jan 05 2010
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