Whew...can you believe it!?  Already a year!  It was my birthday last year that we were speeding down the 95 to get to the hospital only to be...

Well I've been extremely tired...since surgery (like 2 hours after surgery) I developed a crazy cough deep in my lungs.  Both doctors assured me...

This is an article written about one of our ROHHAD friends.  She lives in Scotland.  I wanted to share because there are so few of us and we need...

Haven had her school pictures taken.  She is just getting so grown up.  I can't believe she's 8 years old.  It's amazing and crazy at the same...

Well it's been two weeks since I had surgery on a large incarcerated umbilical hernia and a smaller hernia above that.  I have now met with the OB...