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groovychik007 Patient Expert

My name is laura Im from the united kingdom i have suffered from profound deafness since i was 8 years old and i had a cochlear implant at 9 yrs old  i also have a condition called Multiple mitochondrial DNA deletions which means my energy genes dont work and i found out that it... Full Bio
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busy busy zzz... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness sorry all for not updating ive been so busy! today my right eye has been watering really badly so i couldnt do my sewing. i opted to do my knitting instead im knitting some ... Read on »
trolls... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness i get so fed up of these "internet trolls" do they not have anything better to do with their lives other than upsetting people through a computer screen? that makes them cow ... Read on »
jumpy meds... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness The meds im on at night time to help me sleep is making me a bit restless when i take it after 9pm. it makes me all sqiggly and writggling about! and i cant stop it!! i just ... Read on »
busy busy bee... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness i have been busy knitting bags for charity work and also doing my nail art! knitting is relaxing for me and ive been doing it for years now ever since mrs small used to baby ... Read on »
sunshine at last... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness Today has been gorgeous weather! im so happy to be able to go out and sit in the garden and relax! Read on »
craft making.... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness i am using my crafty expertise to hopefully raise money for mito research i have been busy knittong bags and doing cross stitch bags hope ppl like them Read on »
Newcastle results... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness wow this is the first time ive had to sit down and write a blog!! so he re goes we went travelled up to middlesbrough first to drop in on family my nana and aunts and cousi ... Read on »
Check out @4Lilyfoundation's T ... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness Check out @4Lilyfoundation's Tweet: https://twitter.com/4Lilyfoundation/status/454672463524548609 Read on »
Check out @4Lilyfoundation's T ... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness Check out @4Lilyfoundation's Tweet: https://twitter.com/4Lilyfoundation/status/454671985982062593 Read on »
Please donate don't let any kiddies die from.this horrible disease!!! by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness Check out @WilsonsSchool's Tweet: https://twitter.com/WilsonsSchool/status/454589948809601025 Read on »
Please donate as much as you can! It really is appreciated!! by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness Check out The Lily Foundation (@4Lilyfoundation): https://twitter.com/4Lilyfoundation Read on »
Yayyyy by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness Check out The Lily Foundation (@4Lilyfoundation): https://twitter.com/4Lilyfoundation Read on »
PEG nurse... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness my peg nurse came this morning  all was good and well apart from a couple of granulates that started to bleed when the button came out but she was happy with it. she put t ... Read on »
FB AWARENESS PAGE by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness https://www.facebook.com/Mitoawareness since a lot of people dont know about mitochondrial disease i have set up  mito adult support group and a mito a wareness page on ... Read on »
PEG nurse tomrw... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness PEG nurse coming tomrw at home she comes every 3 months i think she will be pleasantly surprised at how im keeping my weight on without the help of the feeds - that reminds ... Read on »
neck muscles... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness the last few days have been crappy for me as im so tired i cant even keep my head up i go to bed about 11/12pm and i wake up around 6 or 7 now ive come off the meds that hep ... Read on »
wow what a time...20 years... by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness wow with all the comotion in the news over this inspiration story  i almost forgot that its 20 years this year since i got my first cochlear implant and i havent loo ... Read on »
three parent IVF by groovychik007 Patient ExpertFacebook Posted in: Blog Posts in Hearing Loss & Deafness i have seen on the news this week and on bbc The one show and it was talking about the pros and cons of the three parent IVF treatment for people who arent strong enough to ... Read on »